Patient Mentor Profile

Amanda McKee

Amanda

Diagnosed in 2004

"I'm the St. Louis PHA Support Group Co-Leader, a full-time cancer registrar, and I love to travel."

About Amanda:

  • Born in 1978
  • Lives in Missouri
  • Type of PH: Associated with Chronic Thromboembolic Disease
  • Languages: English

Amanda feels comfortable discussing her experiences with:

  • working with PH
  • communicating with medical personnel
  • organizing medical records
  • legislative advocacy
  • local support groups
  • CTEPH

Contact Amanda:

Fill out my online form.
Disclaimer: PHA PHriends are available to provide hope and support to PH patients and caregivers. They are not intended to provide medical advice on individual matters, which should be obtained directly from a physician.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.