Patient Mentor Profile
Diagnosed in 1986
"I was diagnosed with PH in 1986. Started Flolan in 1997 and continued that therapy until February of 2013 when I received a lung transplant.
I had many things I liked to do before transplant but I have been told the "new me" will find different things now that I am not wearing a pump 24/7!
Most of all I like to "talk" to other patients so please contact me and ask questions or just vent. I'm here."
- Born in 1967
- Lives in Iowa
- Type of PH: Associated with Lupus
- Languages: English
Amy feels comfortable discussing her experiences with:
- infused medication
- oral medication
- cardiac or pulmonary rehabilitation
- depression and mental health issues
- working with PH
- traveling with PH
- communicating with medical personnel
- organizing medical records
- local support groups
Patient Email Mentor
This PHA PHriend is currently on break. We have many other PHriends available to help you. If you have any concerns please email Outreach@PHAssociation.org or call 301-565-3004x777.
Disclaimer: PHA PHriends are available to provide hope and support to PH patients and caregivers. They are not intended to provide medical advice on individual matters, which should be obtained directly from a physician.