Patient Mentor Profile

Colleen Schnell

Colleen

Diagnosed in 1975

"I love making jewelry and spending time with my family and friends. I run a local PH support group and I host two PH chats online."

About Colleen:

  • Born in 1975
  • Lives in upstate NY
  • Type of PH: Associated with Congenital Heart Disease (CHD)
  • Languages: English

Colleen feels comfortable discussing her experiences with:

  • oral medication
  • supplementary oxygen
  • cardiac or pulmonary rehabilitation
  • depression and mental health issues
  • working with PH
  • traveling with PH
  • organizing medical records
  • local support groups
  • online communities (PHA email groups, message boards, chats)

Contact Colleen:

Fill out my online form.
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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.