Patient Mentor Profile



Diagnosed in 2010

"I am a college student. I am studying public health and healthcare management. I would like to enhance the quality of other patients' lives as much as I can."

About Haley:

  • Born in 1991
  • Lives in Pennsylvania
  • Type of PH: Idiopathic
  • Languages: English, beginner Spanish

Haley feels comfortable discussing her experiences with:

  • working with PH
  • oral medication
  • supplementary oxygen
  • depression and mental health issues
  • communicating with medical personnel
  • communicating with children about PH
  • communicating with school personnel about PH
  • traveling with PH
  • organizing medical records
  • local support groups
  • online communities (PHA email groups, message boards, chats)

Contact Haley:

Fill out my online form.
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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.