Patient Mentor Profile

Kathy

Kathy

Diagnosed in 2011

"I am a single woman who is passionate about helping others. I am active in my community and in my church. I love music and enjoy going to see local bands."

About Kathy:

  • Born in 1971
  • Lives in Illinois
  • Type of PH: Associated with another condition
  • Associated Conditions: Lupus, CTEPH, antiphospholipid syndrome (APS)
  • Languages: English

Kathy feels comfortable discussing her experiences with:

  • infused medication
  • oral medication
  • supplementary oxygen
  • cardiac or pulmonary rehabilitation
  • depression and mental health issues
  • communicating with school personnel about PH
  • communicating with medical personnel
  • communicating with children about PH
  • organizing medical records
  • advocacy and awareness-raising work
  • fundraising and organizing special events
  • online communities (PHA email groups, message boards, chats)

Contact Kathy:

Fill out my online form.
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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.