Patient Mentor Profile



Diagnosed in 2011

"I am a single woman who is passionate about helping others. I am active in my community and in my church. I love music and enjoy going to see local bands."

About Kathy:

  • Born in 1971
  • Lives in Illinois
  • Type of PH: Associated with another condition
  • Associated Conditions: Lupus, CTEPH, antiphospholipid syndrome (APS)
  • Languages: English

Kathy feels comfortable discussing her experiences with:

  • infused medication
  • oral medication
  • supplementary oxygen
  • cardiac or pulmonary rehabilitation
  • depression and mental health issues
  • communicating with school personnel about PH
  • communicating with medical personnel
  • communicating with children about PH
  • organizing medical records
  • advocacy and awareness-raising work
  • fundraising and organizing special events
  • online communities (PHA email groups, message boards, chats)

Contact Kathy:

Fill out my online form.
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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.