Patient Mentor Profile

lillian m

Lillian

Diagnosed in 2008

"I am a stay at home person. I like to make awareness bracelets and chat online in my spare time. I am also an avid reader of e-books."
Lee mi perfil en español

About Lillian:

  • Born in 1953
  • Lives in Puerto Rico
  • Type of PH: Idiopathic (formerly known as primary)
  • Languages: English, Spanish

Lillian feels comfortable discussing her experiences with:

  • oral medication
  • inhaled medication
  • supplementary oxygen
  • depression and mental health issues
  • online communities (PHA email groups, message boards, chats)

Contact Lillian:

Fill out my online form.
Disclaimer: PHA PHriends are available to provide hope and support to PH patients and caregivers. They are not intended to provide medical advice on individual matters, which should be obtained directly from a physician.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.