"Why I Planned a Special Event"
in organizers' own words |
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Why Plan a PHA Special Event?

“I know that this organization is leading the fight for new treatments and awareness. I believe that my sister is living longer than we thought because of all the people working with PHA to find a cure one day”
-- Debbie
Castro
Debbie Does Disney 5k Fundraiser for PHA,
PHA Volunteer Services Director and sister to PH patient
Alex F (diagnosed 1998) |
You’re
Committed to Making a Difference and Raising Awareness
about This
Terrible Disease.
You want to do your part by raising awareness and funds to put a spotlight on this illness, and build a better world for all those living with PH.
Your
Efforts Support Essential Patient Services
The Pulmonary Hypertension Association provides a community
of hope as well as support and education for patients and
families affected by PH. PHA offers numerous services to
patients and caregivers, such as PHA
on the web, a patient-to-patient helpline staffed
by trained and knowledgeable PH patient volunteers, PHA support
groups, and newsletters such as the quarterly magazine Pathlight
and patient-edited Persistent Voices. Your efforts also help
us strengthen our support groups, so that instead of feeling
alone, patients are empowered, connected, informed, and hopeful.
PHA works closely with the National Heart, Lung, and Blood Institute (NHLBI) and the Center for Disease Control and Prevention (CDC). The Pulmonary Hypertension Association offers three major research awards each year to support cutting-edge research on pulmonary hypertension. By sponsoring researchers at the forefront of the field, PHA actively ensures a brighter future for those with PH and supports the fight for a cure. All three of PHA’s research grants are used exclusively to support the research for the cure for PH. Since PHA has directly funded research through three distinct programs, our research programs leverage additional funds through partnerships with the American Thoracic Society and NHLBI. Learn
More
In 2002, PHA launched the first and only medical journal dedicated to PH. This quarterly journal currently helps educate 40,000 cardiologists, pulmonologists, and rheumatologists in the US and around the world. PHA also supports professional sections within the association for physicians and researchers (PH Clinicians and Researchers) and for allied health professionals including nurses, pharmacists and respiratory therapists (PH Resource Network). PHA continues to offer a series of medical and patient education in a variety of venues. PH is moving from an unknown illness, to one that is increasingly becoming understood by the medical community.
By making our fellow citizens aware of PH, we are creating new interest and support for solutions. Special events are putting a focus on PH in communities throughout the nation. As a volunteer coordinator, you help PHA produce programming that encourages and facilitates local news coverage about PH, thereby raising awareness and preventing misdiagnosis.
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