About PHA

Our Mission and Vision

Our mission is to extend and improve the lives of those affected by PH.

Our vision is a world without PH, empowered by hope.

The Pulmonary Hypertension Association (PHA) is the largest and oldest PH association in the world. PHA is a community-based nonprofit that relies on donations to fund its many programs, including the nation’s largest PH patient and caregiver support group network, lifesaving early diagnosis awareness and education programs, specialty care resources, and research to find ways to prevent and cure PH.

We are a young organization that is changing the history of an illness. From simple beginnings — four women around a kitchen table in Florida in 1991 — PHA has evolved in size and complexity. While we have grown, PHA has stayed true to our roots and the vision and ingenuity of our founders. Today we are a 501(c)(3) nonprofit organization, serving more than 16,000 members and supporters. We continue to work every day to end isolation, provide education, involve our constituents in everything we do, and find a cure for pulmonary hypertension.

Join our community

By connecting with PHA, you are part of a community that:

Supports one another.

With support groups in 49 states, Puerto Rico and the District of Columbia, we spread hope, information and provide a sense of community across the nation. Find a support group near you

Turns strangers into friends.

It doesn’t matter where you live, you can be a part of the PH community. PHA’s online communities of discussion boards, email groups and online support group chats let you connect with others any time, ending isolation and providing hope.

Shares your stories.

Stories of patients and caregivers help others feel less alone with this disease. Find inspiration in print in Pathlight, our quarterly newsletter, and online in Our Journeys.

Helps out when called upon.

Following PHA’s core belief that any person whose life is touched by PH has the right to fight back as much as health and interest allow, volunteers lead support groups, answer the Support Line, work at meetings, provide editorial support for Pathlight and other publications, keep an eye on our website, and so much more. And, year round, the work of the PHA staff is complemented by loyal and industrious volunteers who come to the PHA office to help get out mailings, stuff packets and whatever else it takes to keep things running smoothly. Become a PHA volunteer

Promotes our common cause.

From visits to the district offices of Congressional representatives to taking part in Lobby Day visits on Capitol Hill, our advocates get the attention of legislators when it comes to PH. PHA members come together in an advocacy community through our 435 Campaign and advocacy email group, sharing victories and exchanging ideas about how to be an effective PH advocate. Advocate with us

Raises awareness.

If your life has been touched by PH, you have a compelling story to tell. When you share your story in your community or with the media, you are shining a light on the disease and possibly helping someone you don’t even know get a proper and timely diagnosis. Help raise awareness

Increases knowledge.

For medical professionals who diagnose and treat PH and for patients who manage their disease, knowledge is essential. Educational opportunities are almost limitless, from our monthly e-Learning Events to our biennial International Conferences. Our comprehensive medical education program, launched in 2009, is facilitating a better understanding of PH for all medical professionals, including those who may encounter PH patients, but lack the know-how to properly diagnose and treat them. Visit PHA's Online University

Diminishes boundaries.

PH is an illness that knows no boundaries. That’s why PHA serves as a hub for approximately 50 national PH associations around the globe, facilitating an exchange of ideas and information on a regular basis. Find out more about our global community

At the same time we are doing all of these things, we never lose sight of what’s most important to our community:

Finding a cure for pulmonary hypertension.

PHA supports cutting-edge research through three distinct research programs. And there are many ways for our constituents to work for a cure as well. You may be a participant in a clinical trial, have shared your medical history or given a blood sample in the research room at a PHA International Conference, held a special event or made a donation to support PHA’s research program.

To extend and improve the lives of those affected by PH

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.