PHAware is the public awareness campaign of the Pulmonary Hypertension Association (PHA). PHA funds patient and family support, early diagnosis education, specialty-care resources and research to find ways to prevent and cure PH. With your help, PHA is moving awareness and support of PH from rare to everywhere.
5 ways to Be PHAware:
- Stay informed! Sign up for the PHANews e-newsletter
- Promote PH awareness by viewing and sharing our PSAs
- Use our social networking and e-advocacy tools to fight for the cause online
- Fundraise for PHA online, at work, or at your next celebration
- Make a donation and share our donation URL with friends
Pulmonary hypertension (PH)...
is a complex, often misdiagnosed disease. PH refers to high blood pressure in the lungs, which makes it difficult for a patient to receive enough oxygen. It forces the heart to work harder, often resulting in right heart failure and death.
the average survival rate for PH patients is only 2.8 years. If you or someone you know has suffered the life-changing effects of a rare disease, or had an illness that is repeatedly misdiagnosed, you have a sense of the everyday struggles faced by PH patients, families and caregivers.
The good news is...
there are 12 FDA-approved therapies available to help PH patients live better lives. While there is currently no cure, there are now as many or more treatments for PH than for all but two of the 7,000 identified rare diseases. PHA-accredited PH Care Centers are leading an effort to improve quality of care and outcomes for PH patients.
Donate today to extend the hope, reach and impact of PHA's pathbreaking programs.