PHCC Initiative Mission Statement
The purpose of the PHA-Accredited Pulmonary Hypertension Care Centers (PHCC) initiative is to establish a program of accredited centers with expertise in pulmonary hypertension that aspires to improve overall quality of care and ultimately improve outcomes of patients with pulmonary hypertension, particularly pulmonary arterial hypertension, a rare and life-threatening group of diseases.
Why the Need for Accreditation?
Despite the availability and success of PAH-targeted therapeutic options over the past two decades, there are still shortcomings with the diagnosis and management of PAH. The median time to diagnosis is still 1.1 years1, with many patients seeing three or more different physicians over this period before proper diagnosis2. In addition, long-term outcomes are still not optimal as many patients still die from PH, require transplantation or need hospitalization.
PH Care Centers: What You Need to Know
PHA plans for the phase-in of accreditation of PH Care Centers to be completed over the next three to four years, with the application process expected to open the first half of 2014. Two types of centers will be accredited: Centers of Comprehensive Care (CCC) and Regional Clinical Programs (RCP). Learn more about the PH Care Centers initiative:
1 - Brown LM, Hubert C, Halpern S, et al. Delay in Recognition of Pulmonary Arterial Hypertension: Factors Identified from the REVEAL Registry. Chest. 2011;140(1):19-26. doi: 10.1378&/chest.10-1166.
2 - "Pulmonary Arterial Hypertension: Recommendations for Improving Patient Outcomes." Pulmonary Hypertension Association. 2011. <www.PHAOnlineUniv.org/files/pha_white_paper_final.pdf>