Medical Professionals

PHCC Initiative Mission Statement

 

The purpose of the PHA-Accredited Pulmonary Hypertension Care Centers (PHCC) initiative is to establish a program of accredited centers with expertise in pulmonary hypertension that aspires to improve overall quality of care and ultimately improve outcomes of patients with pulmonary hypertension, particularly pulmonary arterial hypertension, a rare and life-threatening group of diseases.

Why the Need for Accreditation?

Despite the availability and success of PAH-targeted therapeutic options over the past two decades, there are still shortcomings with the diagnosis and management of PAH. The median time to diagnosis is still 1.1 years1, with many patients seeing three or more different physicians over this period before proper diagnosis2. In addition, long-term outcomes are still not optimal as many patients still die from PH, require transplantation or need hospitalization.

PH Care Centers: What You Need to Know

PHA plans for the phase-in of accreditation of PH Care Centers to be completed over the next three to four years, with the application process expected to open the first half of 2014. Two types of centers will be accredited: Centers of Comprehensive Care (CCC) and Regional Clinical Programs (RCP). Learn more about the PH Care Centers initiative:

1 - Brown LM, Hubert C, Halpern S, et al. Delay in Recognition of Pulmonary Arterial Hypertension: Factors Identified from the REVEAL Registry. Chest. 2011;140(1):19-26. doi: 10.1378&/chest.10-1166.
2 - "Pulmonary Arterial Hypertension: Recommendations for Improving Patient Outcomes." Pulmonary Hypertension Association. 2011. <www.PHAOnlineUniv.org/files/pha_white_paper_final.pdf>
 

Raising the Level of Care

Anticipated Outcomes

  • Patients are better informed about comprehensive PH care
  • Patients have improved access to Centers with expertise in PH
  • Patients experience less time between symptom onset and diagnosis
  • A medical community better informed about standards of PH care
  • Therapeutic modalities are appropriately used to improve long-term outcomes
  • Increased opportunities for collaboration between Centers for clinical care and PH research

Questions?

If you have any questions or would like to get the latest updates on the PHCC intiative, contact us at Medical@PHAssociation.org.

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.