Patients

The PHA-Accredited PH Care Centers (PHCC) program is a new initiative of PHA's Scientific Leadership Council to create a program for accrediting programs in the United States to raise the level of care for pulmonary hypertension patients. Accreditation will be based on a Center’s overall commitment to PH patients, breadth of healthcare professionals involved, and scope of services provided.

How to Find a PH Specialist During Phase-In of the PHCC Program

PHA expects the implemenation process for phase-in of accreditation of Centers to be carried out over the next three to four years, during which you will be able find newly accredited Centers listed here. During the phase-in process, PHA's Find a Doctor and Find a Pediatrician directories will continue to be available to you to find a PH specialist.

How PH Care Centers Are Expected to Improve Your Medical Care

  • Patients are better informed about comprehensive PH care
  • Patients have improved access to Centers with expertise in PH
  • Patients experience less time between symptom onset and diagnosis
  • A medical community better informed about standards of PH care
  • Therapies are appropriately used to improve long-term outcomes
  • Increased opportunities for collaboration between Centers for clinical care and PH research
 
 

The Two Types of Centers

Two types of centers will be accredited: Centers of Comprehensive Care (CCC) and Regional Clinical Programs (RCP). Both accredited CCCs and RCPs will have demonstrated a commitment to providing expert-level care based on pulmonary arterial hypertension (PAH) consensus guidelines.

Centers of Comprehensive Care

CCC PHCC Center of Comprehensive Care

A PHA-Accredited Center of Comprehensive Care is a highly organized, full-time PH Center that proficiently evaluates PH patients based on published evidence-based guidelines and also provides expert treatment of pulmonary arterial hypertension (PAH) patients with all of the FDA-approved therapies. CCCs also make important contributions to PH research and education.

Regional Clinical Programs

RCP PHCC Regional Clinical Program

A PHA-Accredited Regional Clinical Program is a regional PH Center that proficiently evaluates PH patients based on published evidence-based guidelines and also provides expert treatment of PAH patients with all non-parenteral therapies. An RCP must collaborate with its regional CCCs by referring patients that may benefit from opportunities unavailable at the RCP, including the initiation of advanced parenteral therapies and participation in clinical research protocols.

 

 

 

Developing and Implementing the PHCC Program

Since September 2011, members of the PHA Board of Trustees, the PHA Scientific Leadership Council, and other key stakeholders in the PH community approved the PHCC initiative in concept. A steering committee and task forces were organized and staffed to address accreditation criteria, program implementation, registry development, communication to key stakeholders and financial sustainability. The members below have been working since this time researching, accumulating and documenting information, developing logic models, defining action steps, building financial projections and validating the program content.

Murali Chakinala, MD (PHCC Chair)   Washington University in Saint Louis
Rino Aldrighetti PHA
Richard Channick, MD Harvard Medical School
C. Gregory Elliott, MD University of Utah
Serpil Erzurum, MD The Cleveland Clinic Foundation
Karen Fagan, MD University of South Alabama
Bob Gray PHA
Michael Patrick Gray PHA
Carl Hicks PHA
Wendy Hill, RN, MSN VA Greater LA Healthcare System
Steven Kawut, MD, MS University of Pennsylvania
Vallerie McLaughlin, MD University of Michigan
Stephen Mathai, MD, MHS Johns Hopkins University
Olivia Onyeador, MHA PHA
Ron Oudiz, MD Harbor UCLA Medical Center
Abby Poms, RRT, RCP Duke University
Jeffrey Sager, MD, MSCE Cottage Hospital
Robert Schilz, DO, PhD Case Western Reserve University
Traci Stewart, RN, MSN University of Iowa
Darren Taichman, MD University of Pennsylvania
Victor Tapson, MD Cedars-Sinai
Corey Ventetuolo, MD, MS Brown University
Joel Wirth, MD Maine Medical Center
Roham Zamanian, MD Stanford University

 

 

Questions?

If you have any questions or would like to get the latest updates on the PHCC intiative, contact us at Medical@PHAssociation.org.

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

For the best viewing experience of this site, it is recommended that you use Internet Explorer 8 or 9 or Firefox.

© 2014 Pulmonary Hypertension Association. All Rights Reserved.

801 Roeder Road, Ste. 1000, Silver Spring, MD 20910   Patient-to-Patient Support Line: 1-800-748-7274
Webmaster@PHAssociation.org
    Privacy Policy   Virtual Tour of Website    Provide Feedback & Report Bugs

Designed by Matrix Group International, Inc.®

NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.