BUILDING AN EFFECTIVE PH ASSOCIATION

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Associations make a world of difference

For every person who is diagnosed with pulmonary hypertension, there is a journey. Whether you are a patient, a family member, or a medical professional committed to keeping your PH patients alive, you are not alone. There is help for you.

Providing this support is the goal of more than sixty formal PH associations worldwide – and could be yours as well! Associations raise awareness of PH among the public and medical communities, create support groups and events, advocate for rights and health-care coverage, promote research, and offer a friendly hand to every member of our global PH community – whether near or far.

YOU can build an effective PH association

The challenges and opportunities that associations face are unique to each country, but remember that the road has been paved. There is a whole network of association leaders ready to offer suggestions and stories about “lessons learned.” Whether you’re hoping to start your country’s first association or to enhance one you’re already involved with, these stories will help you get started.

Start an Association Today: Read the Guide Online

FOUNDERS’ JOURNEYS

Maleen Fischer

Maleen Fischer was just three years old when she was diagnosed with pulmonary hypertension. Her parents were told: “Sorry, we cannot do anything about it. Your daughter will not live past five years old.” Instead of giving up hope, her father founded PHA Austria.

Read on…


SUMBIT YOUR STORY
AND SUGGESTIONS

International@ PHAssociation.org

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.