Aaron and AlexAaron and Alex

Meet Alex and Aaron!

Where do you live?
Aaron and Alex:
We live in San Clemente, California.

How old are you?
Aaron: 11 years old.
Alex: 12 ¾ years old.

How old were you when your father was diagnosed with PH?
Aaron: I was 8 years old but we found out he had it when I was ten.
Alex: I was 9 years old but we found out he had it when I was 11.

What is your favorite thing to do with your father since she was diagnosed with PH?
Aaron:
Going bowling.
Alex: My favorite thing to do with my dad is go to the beach.

How has PH changed your family?
Aaron: He is more tired and he can't do a lot of things with us.
Alex: PH has changed my family a lot because we have not been able to do a lot of things because my dad has been extremely tired. We have tried hard to cope with his condition. We also had to move twice because of his condition.

What has finding your family’s “new normal” meant for your family?
Aaron: Not being able to do as much as a family.
Alex: It means not being able to do a lot of family activities but we try to do as much as possible.

What advice would you give other kids who have a parent with PH?
Aaron: Spend time with your parents.
Alex: My advice to other kids would be: You’re not alone, there are others like you who have parent(s) struggling with PH. I am glad I got to learn and experience what living through this condition and lifestyle means. Keep your head up always. I know going through this can be hard but I have learned to enjoy what time I get to spend with him. I hope all those little kids will one day be happy that they that to have a loving parent like mine who adopted me and took me under his wing.

 

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