Meet Taryn!

TarynThis interview was conducted by Mira Kruger, granddaughter of a PH patient and a volunteer writer for PHA's Pathlight.

Where do you live?
I live in Wisconsin.

How old are you?
I'm 8 years old.

When were you diagnosed?
My mom says I was diagnosed when I was 5 years old.

When did you first start having symptoms of pulmonary hypertension?
I started having symptoms when I was 1 year old, but my mom says that they didn't recognize my symptoms until after I was diagnosed.

What were your symptoms?
I started having fainting spells when I was 1 year old that were caused by PH. I also got tired really easily whenever I walked, but my parents thought it was because I was little.

What activities do you like to do?
I like to read, play piano and do Irish dancing.

Have you ever felt unable to do something because of PH?
I can't run very much at the gym or during recess, and I also can't play basketball anymore.

How has your life changed since you've been diagnosed with PH?
I don't remember not having PH, so I don't know what would be different if I didn't have it.

What is a message you'd like to pass on to other kids with PH?
Remember to take your medicine because it makes you feel better. You may not be able to run, but there are a lot of fun things you can still do!

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.