|Anna Bower, who has pulmonary hypertension,
lupus and scleroderma, with her three nieces
Many pulmonary hypertension patients are diagnosed with PH in association with one or more related conditions. Research shows that up to 30% of scleroderma patients, 20-40% of sickle cell patients and one out of every 200 HIV patients develop at least mild PH.
Other conditions commonly associated with PH include mixed connective-tissue disease, congenital heart disease (CHD), chronic obstructive pulmonary disease (COPD), hereditary hemorrhagic telangiectasia (HHT), sleep apnea, liver disease and lupus. PH has also been linked to the use of certain drugs and toxins, including fenfluramine, dexfenfluramine and methamphetamines.
Learn more about PH and…
Connect and Find Support
If you’re juggling multiple conditions and the symptoms, specialists and medications that accompany each, you’re not alone. Many patients and caregivers in our community understand the uncertainty and stress that go hand-in-hand with a diagnosis of PH related to another disease. Whether you’re living with PH plus scleroderma, PH plus liver disease or PH plus another condition, you can share information and connect with people who understand.
- Join myPHA, PHA’s online community exclusively for PH patients and caregivers. When you sign up for myPHA, you'll be connected to resources specific to your conditions and join a private group for those living with PH and associated conditions.
- Follow blogs on myPHA to read personal stories by other people living with PH and an associated medical condition. You can find posts particular to associated conditions in the "PH Plus" section.
- Join the PH Plus Facebook group
- Email a PH Email Mentor for one-on-one support