PULMONARY HYPERTENSION: A PATIENT’S SURVIVAL GUIDE
Find answers to these and other questions in the Survival Guide
Pulmonary Hypertension: A Patient’s Survival Guide is a resource book written by a PH patient and published by the Pulmonary Hypertension Association. Known informally as just “the Survival Guide,” this important book serves as a soup-to-nuts guide for patients. It includes detailed and frank information about the mechanics of PH, the latest treatments, patient care and lifestyle issues.
Chapters include:
- How Do I Know I’ve Really Got PH?
- PH: The Other High Blood Pressure
- Who Gets PH?
- PH Treatments: The Basics
- PH Drugs
- Surgical Treatments
- Tell Me, Doc, How Long Do I Have?
- Children and PAH
- What to Eat When You Have PH
- Dealing With Emergencies, Doctors, Colds and Flu
- You’re Not the Only One with the Blues
- The Active Life: Working, Exercising, Traveling, Living
- Tedious Paperwork and Legal Matters
- Resources
Now in its third edition, the Survival Guide was written by Gail Boyer Hayes, a PH patient, and is updated twice a year by a team of patient and medical writers under the leadership of Dr. Ron Oudiz, who is currently serving as medical editor.
Are you a PH patient with strong writing skills?
You can become part of our patient writing team! Contact Patti at Guidewriters@PHAssociation.org to learn more. Learn more about the Survival Guide writing team