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Disclaimer: The Pulmonary Hypertension
Association does not own, control or endorse any of these sites and is
not responsible for their content.
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American Academy of Sleep Medicine provides information on sleep and sleep disorders, and can help patients find accredited sleep centers to help improve sleep patterns.
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About 500,000 adults in the United States currently live with congenital heart disease. For more information and support go to Adult Congenital Heart Association.
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American Heart Association offers resources to help manage cardiovascular health.
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Several clinical studies have shown a 20% higher
prevalence of pulmonary hypertension in patients with advanced liver
disease. For information and resources go to American Liver
Foundation. |
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American Lung Association works to improve lung health through education, advocacy and research. |
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HHT is a genetic disorder that causes abnormalities of blood vessels and has been found to. Read more at Hereditary Hemorrhagic Telangiectasia (HHT) Foundation. |
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American Thoracic Society Public Advisory Roundtable is
a partnership between ATS and organizations that represent people
affected by respiratory diseases, sleep-related conditions, and related
critical illnesses with the intent of advancing shared educational,
research, patient care, and advocacy goal.
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The National Institute of Health’s Office of
Rare Disease Research provides information about more than 6,000 rare
diseases, current research and clinical trials, and support
groups.
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The
National Organization of Rare Diseases (NORD) offers many programs and
services for people living with rare diseases. Go to NORD for more
information.
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People with sickle cell disease have red blood cells that become hard and pointed instead of soft and round. Sickle cells cause anemia, and can be associated with pulmonary hypertension. Read more at the Sickle Cell Association of America.
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Though the exact number of pulmonary hypertension patients with scleroderma is not known, estimates range from 10% to 60% of scleroderma patients, read more at Scleroderma Foundation.
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Scleroderma Research Foundation is dedicated to finding improved therapies and a cure for scleroderma by funding research and Scleroderma Centers of Excellence, which provide multi-specialty clinical care in dedicated facilities throughout the US. |