PHA NewsPHANews

PHANews is a biweekly e-newsletter providing the latest news on PH and PHA for members of the PH community.

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Latest Issue

Oct. 15, 2014 - PHCC Improves Patient Care

  • Blog from PHA's President: PH Care Centers (PHCC) and the Patient Registry
  • Awareness Month: Order Your PH Gear & Organize a Party for Color the World Periwinkle Day
  • Tell the Media About PH: Three Fast and Easy Ways to Get Your Story in the Media
  • Help Keep PHA Strong: Support the Fight Against PH
  • PH News Headlines
  • Video Spotlight: Chloe Temtchine has added her voice to the Still PHighting Campaign by making her video selfie to Congress.

PHANews Archives

The following archives are provided for historical purposes only. Given the changing nature of the web, some links may have expired, but each past issue will still give you a sense of what was going on in the PH community at any given time.

2014 | 2013 | 20122011 | 2010 | 2009 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.