Welcome to our group's website! Please join us for information, education, support, hope and empowerment! If you have not been to a meeting before or for a while, then please come! 

Our meetings are usually held every quarter on the second Saturday of the month: our months are May, August, November and February.


Leader Contact Information

Feel free to contact our group's leaders to share your story, ask questions and get connected with our group.

Group email address:
View leader contact info

Upcoming Meetings and Events

Come meet with other patients and caregivers at our next support group meeting.

View Calendar

Our next meeting will be held:
Saturday, November 14, 2015

Novant Health Matthews Medical Center
1500 Matthews Township Parkway
Matthews, NC  

 Meeting 11:30 - 1:30

Social Hour 1:30 - 2:30

Usual classroom near the reception desk at the back entrance.  

Emergency Preparedness
Speaker - Maria Hymon, ACNP
Columbia, SC
Lunch will be provided by Gilead
**Please RSVP by Wed Nov 11 to be included in the lunch  **

Phone:  704-659-4985      



  If you have questions or need additional information, please don't hesitate to call! 



Management of this Site: Each support group website is managed by the group's volunteer leader, usually a patient. If you find outdated contact information, old meeting information, or any content that requires attention from PHA, please send an email with the link to the group site to:
Medical Disclaimer: Medical information included in these pages, including in newsletters and to outside links, may not have been reviewed for accuracy and appropriateness by PHA. We encourage patients to discuss their healthcare with their doctors. We do not provide medical advice on personal health matters, which should be obtained directly from a physician. PHA cannot be responsible for web visitors' actions taken as a result of their interpretation of information contained on these pages.

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.