Welcome to our group's website! PHA support groups provide support, education and most of all hope. If you are in the area, we encourage you to join us.
We have patients attending from Iowa, south of Rochester and from the north, as far as Duluth, MN, plus from La Crosse, WI on the east, besides locals and other near by towns like Stewartville and Kasson. Due to the long driving involved, it is not possible for everyone to attend all the meetings. However our local members like to have one meeting every month from Spring through the end of the year. We do not meet in Winter due to inclement weather conditions.
Our meetings are held generally on third Saturdays except when it is more convenient for the speaker from 1:00 p.m. to 3:00 p.m. A lunch is provided at meetings held in Victoria's Ristorante with free parking on the street and downtown ramps. The address is 7 First Avenue SW, Rochester, MN 55902
We welcome all patients and caregivers to our meetings.
Leader Contact Information
Feel free to contact our group's leaders to share your story, ask questions and get connected with our group.
Group email address: MN-Rochester@PHASupportGroups.org
Leader : Neeta Pai, Patient
Co-Leader: Amanda Reicks, Caregiver to a Toddler
Mayo Clinic Supporters: Diane Bray, RN & Susan Tointon, RN
Upcoming Meetings and events
Third Meeting of the year, 2014
July 12th, (pre-poned from our usual Third Saturday date) Saturday
Speaker: Rebecca Schaffer, R.D. L.D. Mayo Clinic
1:00 p.m. to 3:30 p.m. Prior to lunch, our own members, Mary Kay & Bill Judd that attended PHA's International conference will share their experience.
Venue: Victoria's Ristorante. 7 First Avenue S.W. Rochester, MN 55902
Please call Neeta with number of attendees.
This meeting is sponsored by the Pulmonary Hypertension Association's Support Group Central Fund. The Support Group Central Fund is made possible by Platinum level sponsorships from Actelion Pharmaceuticals, United Therapeutics and Bayer Health Care and a Gold level sponsorship from Gilead Sciences.
Save the Date: August 16th Saturday
Speaker: Robin Hohsfield, RN from Colorado
Topic: Insights on Clinical Trials
Venue: Victoria's Ristorante - same as above.
Speaker and Lunch will be provided by Gilead Sciences. Thank you Tracey Johnson!
September 20th : Care for the Caregivers Sponsored by Express Scripts. Thank you, Jessica Hutchison!
An e-mail will be sent out to notify all the members, followed by a post card from PHA with reminder of upcoming meeting with the venue and speaker details.
Upcoming Speaker and Topics, not in any particular order:
- What's new in the horizon towards PH treatments targeting right heart repair, Infammation - PH Conference Summary.
- Discussions on giving back to PH community via Awareness and Advocacy.
Take care - Stay healthy, happy and peaceful!
Live in the Moment!
Please do check out our blogs of news titbits by clicking on 'Blog' on the left corner of this page.
Your PH story and photos are welcome to be posted here and on Our Journeys page. Do e-mail them to to Neeta Pai. Thank you!