ROCHESTER, MINNESOTA

Welcome to our group's website! PHA support groups provide support, education and most of all hope. If you are in the area, we encourage you to join us.

We have patients attending from Iowa, south of Rochester and from the north, as far as Duluth, MN, plus from La Crosse, WI on the east, besides locals and other near by towns like Stewartville and Kasson. Due to the long driving involved, it is not possible for everyone to attend all the meetings. However our local members like to have one meeting every month from Spring through the end of the year. We do not meet in Winter due to inclement weather conditions.

Our meetings are held generally on third Saturdays except when it is more convenient for the speaker from 1:00 p.m. to 3:00 p.m. A lunch is provided at meetings held in Victoria's Ristorante with free parking on the street and downtown ramps. The address is 7 First Avenue SW, Rochester, MN 55902

We welcome all patients and caregivers to our meetings.

Leader Contact Information

Feel free to contact our group's leaders to share your story, ask questions and get connected with our group.

Group email address: MN-Rochester@PHASupportGroups.org

Leader : Neeta Pai, Patient 

Co-Leader: Amanda Reicks, Caregiver to a Toddler

Mayo Clinic Supporters: Diane Bray, RN & Susan Tointon, RN

 


View leader contact info

 

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Upcoming Meetings and events 

Next Meeting Date:

 

5th Meeting of the year, 2014

October 18th 

Speaker: Jessica from Accredo Health.

Topic: Caregiving for the caregivers.

Venue: Victoria's Ristorante, 7 First Avenue SW

Rochester, MN 55902.

Please e-mail or call Neeta with number of attendees. 

This meeting will be sponsored by the Pulmonary Hypertension Association's Support Group Central Fund. The Support Group Central Fund is made possible by  Platinum level sponsorships from Actelion Pharmaceuticals, United Therapeutics and Bayer Health Care and a Gold level sponsorship from Gilead Sciences. 

 

6th meeting of the  Year: November  8th

Speaker:  Robin Hohsfield, RN from Colorado

Topic: Insights on Clinical Trials

Venue: Victoria's Ristorante - same as above.

Speaker and Lunch will be provided by Gilead Sciences. Thank you Tracey Johnson!

 

Holiday Meeting - Final for the year: December 13th

Speaker:  Eric Fenstad, MD

PH Center, Cardio-Vascular Division, Mayo Clinic.

Topic: PH treatments; What's new in the horizon-Targeting right heart repair and infammation - Sciencific Sessions' Summary from PHA's International Conference -

 

 

An e-mail will be sent out to notify all the members, followed by a post card from PHA with reminder of the meeting.

If you would like to be notified, please add your e-mail address or send a note to Neeta. 

Upcoming Topics, not in any particular order for next year:

  • Discussions on giving back to PH community via Awareness and Advocacy.
  • All about Supplemental Oxygen use. 
  • Emergency Preparedness.

                          Live in the Moment!Take care - Stay healthy, happy and peaceful! 

 

Please do check out our blogs of news titbits by clicking on 'Blog' on the left corner of this page. 

 

Your PH story and photos are welcome to be posted here and on Our Journeys page. Do e-mail them to Neeta Pai. Thank you! 

View Calendar

 


Management of this Site: Each support group website is managed by the group's volunteer leader, usually a patient. If you find outdated contact information, old meeting information, or any content that requires attention from PHA, please send an email with the link to the group site to: SupportGroups@PHAssociation.org.
Medical Disclaimer: Medical information included in these pages, including in newsletters and to outside links, may not have been reviewed for accuracy and appropriateness by PHA. We encourage patients to discuss their healthcare with their doctors. We do not provide medical advice on personal health matters, which should be obtained directly from a physician. PHA cannot be responsible for web visitors' actions taken as a result of their interpretation of information contained on these pages.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.