Welcome to our group's website! PHA support groups provide support, education and most of all hope. If you are in the area, we encourage you to join us.
We have patients attending from Iowa, south of Rochester and from the north, as far as Duluth, MN, plus from La Crosse, WI on the east, besides locals and other near by towns like Stewartville and Kasson. Due to the long driving involved, it is not possible for everyone to attend all the meetings. However our local members like to have one meeting every month from Spring through the end of the year. We do not meet in Winter due to inclement weather conditions.
Our meetings are held generally on third Saturdays except when it is more convenient for the speaker from 1:00 p.m. to 3:00 p.m. A lunch is provided at meetings held in Victoria's Ristorante with free parking on the street and downtown ramps. The address is 7 First Avenue SW, Rochester, MN 55902
We welcome all patients and caregivers to our meetings.
Leader Contact Information
Feel free to contact our group's leaders to share your story, ask questions and get connected with our group.
Leader : Neeta Pai, Patient
Co-Leader: Amanda Reicks, Caregiver to a Toddler
Mayo Clinic Supporters: Diane Bray, RN & Susan Tointon, RN
Upcoming Meetings and events
Next Meeting Date:
5th Meeting of the year, 2014
Speaker: Jessica from Accredo Health.
Topic: Caregiving for the caregivers.
Venue: Victoria's Ristorante, 7 First Avenue SW
Rochester, MN 55902.
Please e-mail or call Neeta with number of attendees.
This meeting will be sponsored by the Pulmonary Hypertension Association's Support Group Central Fund. The Support Group Central Fund is made possible by Platinum level sponsorships from Actelion Pharmaceuticals, United Therapeutics and Bayer Health Care and a Gold level sponsorship from Gilead Sciences.
6th meeting of the Year: November 8th
Speaker: Robin Hohsfield, RN from Colorado
Topic: Insights on Clinical Trials
Venue: Victoria's Ristorante - same as above.
Speaker and Lunch will be provided by Gilead Sciences. Thank you Tracey Johnson!
Holiday Meeting - Final for the year: December 13th
Speaker: Eric Fenstad, MD
PH Center, Cardio-Vascular Division, Mayo Clinic.
Topic: PH treatments; What's new in the horizon-Targeting right heart repair and infammation - Sciencific Sessions' Summary from PHA's International Conference -
An e-mail will be sent out to notify all the members, followed by a post card from PHA with reminder of the meeting.
If you would like to be notified, please add your e-mail address or send a note to Neeta.
Upcoming Topics, not in any particular order for next year:
- Discussions on giving back to PH community via Awareness and Advocacy.
- All about Supplemental Oxygen use.
- Emergency Preparedness.
Live in the Moment!Take care - Stay healthy, happy and peaceful!
Please do check out our blogs of news titbits by clicking on 'Blog' on the left corner of this page.
Your PH story and photos are welcome to be posted here and on Our Journeys page. Do e-mail them to Neeta Pai. Thank you!