ST. LOUIS AREA SUPPORT GROUP

support group meetingWelcome to our group's website! PHA support groups provide support, education and most of all hope. If you are in the area, we encourage you to join us.

Leader Contact Information

Feel free to contact our group's leaders to share your story, ask questions and get connected with our group.

Group email address: MO-StLouisArea@PHASupportGroups.org
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2014 St. Louis PHA Support Group

 

Meeting Schedule

Our Meetings are held at from 12pm-2pm (unless otherwise stated) Center For Advanced Medicine Building, 3rd Fl, Conference Room 1 Barnes-Jewish Hospital Campus, 4921 Parkview Place, St. Louis, MO 63110

 
Sleep & PH

When: Saturday March 8, 2014
Where: CAM Bldg, Conference Room 1, 3rd Fl
Speaker: Dr. Ashok Kirumaki – St. Louis University School of Medicine
Sponsor: Janie Summers – Accredo

 

 

Midwest Chapter Trivia Night Fundraiser!

 

When: Friday March 28, 2014, Doors Open at 6pm, Games Start at 7pm

 

Where: Orlando Gardens Banquet Facility, 2050 Dorsett Village Plaza, Maryland Heights, MO 63043

 

Price: $25/pp with teams of 8 (price includes Beer, Wine, Mixed Drinks, Soda, Tea, Water-feel free to bring your own snacks).

 

Reservations: https://www.phassociation.org/Midwest-PHA/TriviaNight  or call Amanda McKee (314) 831-4520 or Chris Fini (636) 282-4057

 

 

 

Travel & PH

 

When: Saturday May 17, 2014

 

Where: CAM Bldg, Conference Room 1, 3rd Fl

 

Speaker: Maribeth Duncan, ANP-BC, Washington University School of Medicine, Barnes-Jewish Hospital

 

Sponsor: Kyle Chasteen – Lung Biotechnology

 

 

 

PHA International Conference

 

When: Friday June 20-Sunday June 22, 2014

 

Where: JW Marriot, Indianapolis, IN

 

 

 

Caring Voice Coalition (CVC) 

 

*Joint Meeting w/St. Louis Scleroderma Support Group

 

When: Saturday July 19, 2014

 

Where: To Be Determined

 

Speaker: Pamela Harris, President & Samantha Harris, Vice President

 

Sponsor: Dan Mai - Actelion

 

 

 

 

To Be Announced

 

When: Saturday September 20, 2014

 

Where: CAM Bldg, Conference Room 1, 3rd Fl

 

Speaker: To Be Announced

 

Sponsor: To Be Announced

 

 

 

Emergencies & PH/PH Awareness Month & Caregiver Appreciation

 

When: Saturday November 15, 2014

 

Where: CAM Bldg, Conference Room 1, 3rd Fl

 

Speaker: To Be Announced

 

Sponsor: Theresa Turken - Gilead

 

 

 

View Calendar

Amanda McKee - Leader
(314) 831-4520
mharv78@hotmail.com

Chris Fini - Co-Leader
(636) 282-4057
finic@wustl.edu

Patty Kaiser - Media Coordinator

Our goal is to meet at least 6 times a year. We try to hold meetings every other month, on Saturday afternoons in the CAM (Center for Advanced Medicine) Building, usually Conf Rm 1, on the Barnes-Jewish/Washington University Medical School Campus, on the corner of Forest Park & Euclid Ave.  Parking passes are available at the meetings.

Testing in PH Leading to New Research and Drugs
When:
Saturday, November 16, 2013; 12-2pm
Where: CAM Bldg, Conf Rm1, 3rd Floor
Speaker: Colleen McEvoy, MD
                 Washington University School of Medicine
Sponsored by: Kyle Chasten,  Lung RX

 


Management of this Site: Each support group website is managed by the group's volunteer leader, usually a patient. If you find outdated contact information, old meeting information, or any content that requires attention from PHA, please send an email with the link to the group site to: SupportGroups@PHAssociation.org.
Medical Disclaimer: Medical information included in these pages, including in newsletters and to outside links, may not have been reviewed for accuracy and appropriateness by PHA. We encourage patients to discuss their healthcare with their doctors. We do not provide medical advice on personal health matters, which should be obtained directly from a physician. PHA cannot be responsible for web visitors' actions taken as a result of their interpretation of information contained on these pages.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.