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Periwinkle PH RibbonMINNESOTA PH

"TWIN CITIES" SUPPORT GROUP

EST  2001

 

Welcome to our group's website! PHA support groups provide support, education and most of all hope. If you are in the area, we encourage you to join us. Our group was founded in 2001. We meet monthly, on the second Saturday of every month (weather permitting) from 1:00 to 3:00 pm. Meetings are open to PH patients, family, caregivers, physicians, nurses, and friends!!! 

 

BE AWARE of BAD WEATHER...we will post any cancelations on this page! Always be safe! You can always call Stephanie to make sure we are holding the meeting. If you feel is is too bad to travel, Please stand home...we want everyone to be safe and there are always more meetings to attend. 

CHECK OUT the pictures from our group, just click on the PHOTOS tab on the left side of the web page. You just might be on there!  also check out our blog. It is updated  every month!

Upcoming Meetings, Events and cancellations will be posted Here.     

 NEXT MEETING Information 

Minnesota "Twin Cities" PH Support Group Meeting

 

Speaker- Dr.Michael McGoon

              Mayo heart & PH Clinic

              Rochester, MN

 

Subject - "Tests & Measurments used to determine the progression of Pulmonary Hypertension".

        Date  -    October 11 2014

  • Time  -    1:00 pm to 3:00 pm

  • Location -  American Lung Association Bldg.

  •                    490 Concordia Ave.

  •                    St.  Paul, MN 55102

  •  Note : lunch will be provided by Actelion

Stephanie 651-738-0681 /  Stephlayer@aol.com

 Bring your Familes, caregivers, Friends, Physicians, nurses and Medical staff. All is welcome to our events.

  • You do need to be an active member of this support group or a volunteer at the meetings to attend the yearly events.
  • Thank you!

 

We don't always have all heart healthy luncheon, so if you would prefer a special dish, please feel free to bring one along to share. We do try to please everyone.

 

HOPE YOU CAN JOIN US THERE...For more information, please contact -

Stephanie 651-738-0681  Stephlayer@aol.com

Irene  612-822-0849  iohrbom@yahoo.com

 FACEBOOK - We now have our own facebook page, it is a closed group for our support group ONLY. If you are a member of our Twin Cities support group and would like to join, please contact Stephanie.

  

August 9, 2014...14th Annual Twin Cities PH picnic was held at Battle Creek Regional Park in Maplewood, MN.

Dr. Monica Colvin-Adams, PH doctor from the Univ. Of MN was our Guest of Honor.

Along with Dr. Michael & Bonnie McGoon from the Mayo Clinic in Rochester, MN and their cute two grandsons.

Thank you to all the volunteers who stepped up to help us out!

It was a fun day!

 

 

 

Here is the Minnesota proclamation signed by Governor Dayton for PH Awareness month of November,2013.

Lois and Preston Piper requested and picked up the proclamation in memory of their daughter Mallory Hicks              

 

A beautiful summer day for the 2013 picnic.  Drs. Pritzger and Thenappan seated front and center.

                                Minnesota PH "Twin Cities" Support Group

  

Medical or PH related Items that you don't have any use for....

sell / swap / trade / or give away

Please contact usand we will list the items here on our blog.

 

Our BLOG is now fully functional!  Please do read it.

Also feel free to look at our "photo album" especially after the 2013 Holiday Party! Note: we welcome your photo's of our support group too! 

WANTED...your PH story., your milestones or events...which could include photos! 

Write your story and contact or send it to our webmaster, David Naumann or to Stephanie and we will add the entries directly in the blog.  Photos are great too, but contact our Webmaster, David Naumann to have them added to your story.


 

 

 

  Leader Contact Information

Leaders Larry Fox, Stephanie Layer, Irene Ohrbom

 

Feel free to contact our group's leaders to share your story, ask questions and get connected with our group. Periwinkle PH Ribbon

View leader contact info

 

View Calendar

 

Pulmonary Hypertension Clinics in the Area: a Wealth of Choices!

Minnesota area PH patients are able to find teams of Pulmonary Hypertension medical specialists in a number of locations in our area.  Our group leaders have identified five clinics, and post them here for your convenience.  The phone numbers and web sites are valid as of September, 2011.

Rochester Mayo Clinic: Cardiovascular Clinic / Pulmonary Hypertension Clinic
507-284-1792
http://www.mayoclinic.org/cardiovascular-disease-rst/pulmhyperclinic.html

University of Minnesota Physicians at Fairview: Cardiac Clinic / Pulmonary Hypertension
612-625-3600
http://www.uofmmedicalcenter.org/Specialties/Heartcare/index.htm

United PH Lung Clinic: Pulmonary Hypertension Clinic
651-224-5895
http://www.thelungclinic.com/services/pulmonary-hypertension-clinic/

Abbott Northwestern Hospital / Minneapolis Heart Institute: Pulmonary Hypertension Clinic
612-863-3900 & 612-863-4000
http://www.mplsheart.com/Services/PulmonaryHypertension.aspx

Park Nicollet / Pulmonary Hypertension Clinic, St. Louis Park952-993-2369
http://www.parknicollet.com/heart/

   About this Minnesota Group Website

Webmaster David Naumann

 

Our Web pages are provided through the Pulmonary Hypertension Association.  Local information including this page, our Blog, and our photo page and these embedded photos have been created and maintained by our leaders and by our Webmaster.  A retired technical guy, David Naumann enjoys learning how to make computers do things.  He has created and maintains a number of websites as a volunteer.

If you need help with any of these pages, feel free to contact Dave at one of our monthly meetings or via email at dnaumann@umn.edu.

 

 


Management of this Site: Each support group website is managed by the group's volunteer leader, usually a patient. If you find outdated contact information, old meeting information, or any content that requires attention from PHA, please send an email with the link to the group site to: SupportGroups@PHAssociation.org.
Medical Disclaimer: Medical information included in these pages, including in newsletters and to outside links, may not have been reviewed for accuracy and appropriateness by PHA. We encourage patients to discuss their healthcare with their doctors. We do not provide medical advice on personal health matters, which should be obtained directly from a physician. PHA cannot be responsible for web visitors' actions taken as a result of their interpretation of information contained on these pages.

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