Welcome to our group's website! PHA support groups provide support, education and most of all hope. If you are in the area, we encourage you to join us.

Learn more about our group

Leader Contact Information

Feel free to contact our group's leaders to share your story, ask questions and get connected with our group.

Group Leader: Merle Reeseman 724 458-5573

 Upcoming Meetings and Events

Come meet with other patients and caregivers at our support group meetings. Typically, we will meet the second Saturday of every odd month at 1 p.m. There will be some changes (*), so always check the date. Click the View Calendar button below for upcoming meeting information.

Please RSVP to Merle  either by phone or email
724 458-5573 (PA) or

                        NOTE NEW LOCATIONS


CC Twinsburg Family Health and Surgery Center – Community Room, lower level - 8701 Darrow Rd., Twinsburg, OH  44087                                                                         

UH Twinsburg Health Center - Community Room A/B – 8819 Commons Blvd., Twinsburg, OH  44087


Date                           Speaker               Location                              

March 21*,      Dr. Gustavo A. Heresi-Davila                                                                                         CC Twinsburg

May 16,                      Landra Slaughter, RN                                                                                  UH Twinsburg  

July 18,                      Debra Hudock RN                                                                                              CC Twinsburg

August 15,                 WALK & ROLL -- fund raiser                                                                            CC Twinsburg

September19,           Dr. Kristen Highland                                                                                          CC Twinsburg

November                  CCF Summit at main campus          date to be announced

December 5,             Dr. Robert Schilz      UH Twinsburg





Management of this Site: Each support group website is managed by the group's volunteer leader, usually a patient. If you find outdated contact information, old meeting information, or any content that requires attention from PHA, please send an email with the link to the group site to:
Medical Disclaimer: Medical information included in these pages, including in newsletters and to outside links, may not have been reviewed for accuracy and appropriateness by PHA. We encourage patients to discuss their healthcare with their doctors. We do not provide medical advice on personal health matters, which should be obtained directly from a physician. PHA cannot be responsible for web visitors' actions taken as a result of their interpretation of information contained on these pages.

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.