Welcome , PHA support groups provide support, education and most of all hope.  If you are in the area, we encourage you to join us.

       This Support Group is now ACTIVE.   Your leaders for this group are Lorrie Tufano, Joy Wagers and Kathy Fader.

 You may reach Lorrie "Tuffy" or Joy (937) 266-1619 Or leave us an email.@

We look forward to our next meeting in September on the 20th.

We would like to thank everyone who came to the last meeting. I am so sorry that Joy and I could not make it. I was tied up with doctors. 

We would like to thank Mike and Angela for filling in.

 Upcoming Meetings and Events

"Things you may have missed"

Potluck Dinner

Bring a dish to share with the group.

Remember to keep in mind our diet rescrictions and our  caregivers as well :~)


Sept 20, from 1:00pm-2:30pm.Located @

Harmony Creek Church 5280 Bigger Rd. Kettering, Ohio 45440.



 Dayton is so far behind in education and support for PH.  So come and be a part of change in Dayton, OHIO        

      Whether you are a shy person, or one who enjoys conversation, there is a place for you at our meeting. 

We look forward to seeing you.   And bring a spouse or caregiver, family or friends

Drinks will be provided 

YOU MUST RSVP for meeting @ least 3 days before PLEASE

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Medical Disclaimer: Medical information included in these pages, including in newsletters and to outside links, may not have been reviewed for accuracy and appropriateness by PHA. We encourage patients to discuss their healthcare with their doctors. We do not provide medical advice on personal health matters, which should be obtained directly from a physician. PHA cannot be responsible for web visitors' actions taken as a result of their interpretation of information contained on these pages.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.