INFORMATION. SUPPORT. HOPE.

Joe Haan, Outstanding Caregiver 2008, with his loving family

If someone you care about has been diagnosed with pulmonary hypertension, you may find yourself taking on unfamiliar responsibilities. Whether you’re a close family member or a friend, neighbor or teacher, you have the opportunity to provide much needed friendship and support. Chances are you have questions about PH and what you can do to help your loved one live a happy and full life.

Here you’ll find information and resources to help you care for your loved one without neglecting your own needs.

• Watch our caregiver webinar
  Get an overview of PH, treatments, and how you can cope as a caregiver.
  
  
• Learn about PH
  Read up on diagnostic tests, treatments and terms.
   
  
• Care for your loved one
  Get practical advice about providing medical and emotional support to a PH patient.
   
  
• Care for yourself
  The most effective and supportive caregivers are those who pay attention to their own needs to prevent caregiver burnout. Find ways to safeguard your own physical and mental health. 

Looking for someone to talk to?

Know that for every PH patient, there’s a PH caregiver who understands what you’re going through. PHA hosts email groups for family members and caregivers to share stories, advice and hope. Join PHA Caregiver (Requires a free Google account. Please allow a short delay while your group membership is processed.)

Are you the parent of a child with PH?

Learn more about pediatric PH, join the PH Parents email group, connect with other families and become an informed advocate for your child. Visit the PH Parents page