Find Parent-to-Parent Support

Family support groupMeet other parents of infants, children or teens with pulmonary hypertension in one of our virtual or local support groups.

PHA Parents Telephone Support Group

A toll-free telephone support group for caregivers of children with PH. This hour-long conference call offers PH parents across the U.S. and Canada the chance to connect in real-time for support, encouragement and information sharing.

Calls are held monthly; see below for the upcoming schedule.

Upcoming call schedule:


Parents Telephone Support Group

November 17, 2014 at 8pm EST: Register!

Join other parents as you discuss balancing your child's PH care around the holiday season! Call in for five minutes or call in for the hour - as much time as you have!

Parents Telephone Support Group

December 15, 2014 at 8pm EST: Register!

Join us to discuss the holiday season! Call in for five minutes or call in for the hour - as much time as you have!

PHA Parents Email Group

An email group community for parents of children with PH. We welcome experienced moms and dads as well as newcomers who urgently need support and encouragement to participate in the discussion. Join now

PH Email Mentors

PHA's PH Email Mentor Program includes a team of parents who are ready and eager to answer your questions by email. They can't provide medical advice, but they can share their experiences raising children with PH and help you find resources to ensure your child receives the best care possible. Email a parent mentor

Local Pediatric Support Groups

Washington, DC
View contact info for leaders

Philadelphia, PA
View contact info for leaders - Coming Soon!

Houston, TX
View contact info for leaders - Coming Soon!

Boston, Massachusetts
View contact info for leaders

Los Angeles, California
View contact info for leaders

Interested in starting a pediatric support group in your area? Contact SupportGroups@PHAssociation.org.

 
 

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.