COPING WITH Pulmonary Hypertension

Coping GuidesOver the past decade, the quality of pulmonary hypertension care has improved greatly. While everyone has “blue” days, it’s important to realize that many pulmonary hypertension patients today are living long and active lives — and that you can, too.

Just as life is made up of more than doctors' appointments, your health is made up of more than medical test results. Your health has a physical component, of course, but also emotional, social and spiritual components that need time and attention if you want to feel your best.

Complete Coping with Pulmonary Hypertension Guides

Download or Order to learn about what to expect and how to move forward if you or someone in your family is living with pulmonary hypertension.

Individual coping articles for newly diagnosed and long-term survivors are available below. Visit Parents, Caregivers and Teens for other individual articles.

Tending to Your Emotional Health

People living with chronic illness frequently report feelings of sadness, disappointment, anger and helplessness. In some, these feelings become more intense and pervasive, taking the form of depression, anxiety, or longterm guilt or grief. These emotions, while serious, are considered normal and can be addressed in a variety of ways.

Communicating with Family and Friends

Beyond managing your physical and emotional health, communicating about the changes in your life and rebuilding healthy relationships after your diagnosis is a challenge that everyone living with PH faces.

Getting Support

Our community is full of courageous people living life to the fullest despite ongoing medical challenges. Connect with a member of the PH community today to tap into some of their shared hope.

PHA's psycho-social resources are made possible through support from from the Medtronic Foundation.
The guides in the "Coping with Pulmonary Hypertension" series were made possible through support from the Medtronic Foundation and an unrestricted educational grant from Gilead Sciences, Inc.

   

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.