Online Insurance Guide


“Get educated and be an expert in PH. Know what you are talking about and it will carry you far.”
- PH Patient

Need More Information About Your Plan or Potential Plan?

Baby PH patient and caregivers

Whether you are covered by a public plan or a private plan, you want to be an informed consumer. Accessing your treatment may depend on how well you know your plan and entitled benefits.




Contact us with insurance questions, success stories or suggestions.
PHA is proud to be able to make educational materials and programs like these available for free to everyone because of the generous support from members of the community just like you. Donations are welcome!

Specialty Pharmacy Feedback

Improve specialty pharmacy service by submitting your praise, concerns and suggestions.

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Help Build Our Program

Contribute an Insurance Letter
Submit a successful insurance letter to our template letters collection and help other PHers overcome insurance challenges!

Browse our collection and learn more about submitting a letter.

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.