Online Insurance Guide


Welcome to our Online Insurance Guide! Whether you’re a patient, family member or medical professional, you will find tools and materials that allow you to advocate for timely access to affordable treatment.

Use these resources to learn about insurance, troubleshoot insurance problems and connect with other patients who have overcome their own insurance challenges. 

Coverage Connection

Coverage Connection is PHA's monthly e-newsletter providing PH-related insurance updates. Read the latest information below or sign up to receive monthly updates via email.

Interested in Learning More?

Caring Voice Coalition

PHA’s Treatment Access Program
301-565-3004 x773

PHA Online Insurance Guide

Submit your comments and concerns to our specialty pharmacy feedback form

Access PHA Classroom webinars on insurance, disability and oxygen here.

Stay Tuned!

Be on the lookout for a mini webinar series debuting later this summer on specialty pharmacy FAQs!

The insurance, disability and oxygen sessions from Conference were recorded and will be made available on the PHA website shortly.

Whether you attended Conference or not, read below for a quick re-cap of the Treatment Access related events and sessions that took place at our 2016 International PH Conference in Dallas, TX.

Specialty Pharmacy Advisory Board Meeting

PHA’s Specialty Pharmacy Advisory Board meets quarterly via web meeting to review data collected via the specialty pharmacy feedback form. During PHA’s Conference, the advisory board had the unique opportunity to meet in person to discuss ways to improve the specialty pharmacy field for the PH community.  Major focuses of the meeting included creating a way for the community to rate how their specialty pharmacy handled their feedback form inquiry, and plans to create a video mini-series on specialty pharmacy FAQs.

Insurance: A Maze or Amazing

Lauren Ruiz, Program Manager at the Caring Voice Coalition (CVC), explained in detail the ins and outs of health insurance. This session covered FAQs about Medicare, the Health Insurance Marketplace, financial assistance and oxygen coverage.

Number one tip from this session: Take charge of your healthcare! Familiarize yourself with insurance terminology, know your plan’s benefits and document all communication with your insurance company. Know that there is also help available if you get stuck.  Contact PHA’s Treatment Access Program or the Caring Voice Coalition for more information.

Disability Benefits

This medically led session was presented by Sr. Patient Advocate, Laruen Patrizio, Esq. from the CVC, and Tonya Zeiger, R.R. T. Topics discussed included the differences between Social Security Disability and Social Security Income, eligibility requirements, and how to best prepare your application for success.

Number one tip from this session: Be mindful and honest in speaking to your physicians. With PH, there are good days and bad days. CVC and PHA recommend documenting your feelings in a calendar or journal to ensure you have a written record to provide to your physician as testament to your symptoms.

Preparing for Travel and Oxygen Use

Dr. Akaya Smith, Dr. Bradley Maron, Glenna Traiger, RN and Tonya Zeiger, R.R.T. presented on oxygen and travel use. During this session, attendees were given tips on how to best prepare for travel in order to have a safe and uneventful trip with their oxygen. Major themes of this session were what does one need to do before traveling with PH and oxygen, how to find a PH specialist at your travel destination, Federal Aviation Administration (FAA) requirements for flying with oxygen, and how to avoid fluid overload when traveling.

Number one tip from this session: Notify your PH team of your travel plans well in advance, allowing adequate time for providers to assist with travel preparation and emergency preparedness.



DISCLAIMER: The Insurance Resources section includes brief summaries of complex subjects. They should be used only as overviews and general guidelines. The views expressed herein do not necessarily reflect the policies or legal positions of the Pulmonary Hypertension Association. These summaries do not render any legal, accounting, or other professional advice, nor are they intended to explain fully all of the provisions or exclusions of the relevant laws, regulations, and rulings of various private and public insurance programs. Original sources of authority should be researched and utilized.
Contact us with insurance questions, success stories or suggestions.
PHA is proud to be able to make educational materials and programs like these available for free to everyone because of the generous support from members of the community just like you. Donations are welcome!

FacebookTwitterInstagram iconLinkedInYouTube

For optimal viewing of, please use a standards-compliant browser such as Google Chrome or Firefox.

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs. PHA does not endorse or recommend any commercial products or services.

801 Roeder Road, Ste. 1000, Silver Spring, MD 20910   Patient-to-Patient Support Line: 1-800-748-7274
    Privacy Policy    Provide Feedback & Report Bugs

Designed by Matrix Group International, Inc.® | © 2016 Pulmonary Hypertension Association. All Rights Reserved.


The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.