LIVING WITH PH
“She asked, ‘You women go through all of this every day?’ and we said, ‘Yes, we do. We do and we have no choice because we want to live.’”
—PH patient Diane Ramirez,
on former U.S. Senator Elizabeth Dole’s reaction to medicating for PH
While it can be difficult to imagine in the days and months following diagnosis, many patients develop strategies to cope with the physical and emotional aspects of living with PH and lead happy, fulfilling lives. With a bit of patience, planning, and flexibility, many people affected by PH find ways to work, travel, exercise, and do the things they loved before they were diagnosed.
Today, people diagnosed with PH can benefit from the experience of thousands of other patients who have learned to effectively manage this illness. Explore this section to find tips, tools and resources to help you adapt to life with PH.
Download PH-specific templates and checklists to create your own personalized medical binder.
Simplify your daily routine with these tips from longterm survivors.
Identify strategies for coping with the emotional and social aspects of PH.
Manage your medications and coordinate your healthcare.
Take the time to prepare for emergencies before they happen.
Give your Caregiver a Shout-out
The "Caregiver Shout-Out" honors family members and friends in the PH community who provide patients with daily encouragement and support.
Make and keep a place for yourself in the workforce by listening to your body and knowing your rights.
Keep your diet on track with advice from PH experts.
Get active without overexerting your body.
Plan ahead for safe and comfortable travel with PH by car, plane or train.
Prepare for changes in weather and altitude.