EMAIL SIGN UP

Press Releases

Press inquiries:

Kelly Williams
240-485-0750
KellyW@PHAssociation.org

2015

Nov. 11, 2015

Pulmonary Hypertension Association Salutes Veterans Raising Disease Awareness
This Veterans Day, the Pulmonary Hypertension Association (PHA) salutes U.S. service men and women for their dedication on and off the battlefield.

Nov. 9, 2015

Second Annual Day of Awareness Could be a Lifesaver for Sufferers of Blood Clot-Related Disease
For the second year, more Americans will be armed with information about a rare disease for which awareness is a matter of life or death. Nov. 17 is the second annual CTEPH Awareness Day, also known as “BUST CTEPH DAY.

Oct. 28, 2015

New Heartwarming Campaign Aims to Save Lives of People with Oft-Misdiagnosed Deadly Disease
This November, Pulmonary Hypertension Awareness Month, a new public service ad campaign will educate people around the world about a life-threatening disease too often misdiagnosed as asthma.

Oct. 8, 2015

Pulmonary Hypertension Patients to Hear from Saint Louis Doctor Diagnosed with their Disease as Pulmonary Hypertension Association Travels to Saint Louis for PHA on the Road
Gillian Stephens was a resident, just starting her career, when she learned that what she thought was asthma was a progressive, life-threatening disease.

Oct. 8, 2015

Rock’n’Roll Philadelphia Half Marathon will be a first Meet-up and Major Milestone for Two Veterans Fighting the Same Disease
The Rock’n’Roll Philadelphia Half Marathon will serve as a pivotal first meeting and game changer for two women – both U.S. Army veterans – as they combat the same life-threatening disease.

Oct. 7, 2015

Unique International Tweet Chat Hosted by the Pulmonary Hypertension Association Opens New World of Information to Patients with a Life-Threatening Disease
Patients from around the world suffering from an under-diagnosed, misunderstood disease will participate in a first-of-its kind live Twitter event.

Oct. 2, 2015

North Carolina Woman to Begin 30-Day Walk for a Cure for the Disease She’s Conquering 28 Years After Doctors Gave Her Months to Live
Diane Ramirez, one of the longest-living survivors of a misunderstood and too-often misdiagnosed disease, will embark on a 75-mile, 30-day walk for awareness and a cure

Sept. 29, 2015

New Jersey Boy with Life-threatening Pulmonary Hypertension (PH) Receives Pope's Special Blessing at Philadelphia Mass
After watching Pope Francis kiss their nine-year-old son, Daniel, on the forehead and give him a blessing, Carlos Torres and Martha Gonzalez of North Bergen, New Jersey, are more hopeful than ever in their fight against pulmonary hypertension (PH).

Sept. 28, 2015

NYC Food Truck Scene to Host Unique Concert Series to Raise Awareness about a Life-threatening Disease
With the portable oxygen tank she lovingly calls, “Steve Martin,” at her side, YouTube sensation and award-winning singer-songwriter Chloe Temtchine will showcase her talent during an unconventional concert series to raise awareness about a life-threatening disease she battles daily.

Sept. 23, 2015

Just Shy of 80th Birthday, "Pacing Parson" Completes Four-Month, Cross-Country Walk for Pulmonary Hypertension Association
Ahead of his 80th birthday, Don Stevenson (aka the Pacing Parson), a Seattle-area (Auburn, Wash.) retired minister and former U.S. Marine, has just completed a four-month, 3,000-mile cross-country walk, raising awareness and, so far, nearly $10,000 in donations and pledges for the Pulmonary Hypertension Association (PHA).

Sept. 16, 2015

Pulmonary Hypertension Association Meeting Highlights Role of Nurses and Other Health Professionals in Caring for Patients with Rare Disease
Pam Kehoe suffered for years, being diagnosed with bronchitis, asthma, COPD and a number of other conditions before she finally learned she had chronic thromboembolic pulmonary hypertension (CTEPH), a form of pulmonary hypertension (PH), caused by old, organized blood clots in the lungs. The person who first suspected it was her sister-in-law, a home health nurse who had cared for PH patients and knew the symptoms all too well.

Sept. 9, 2015

New Campaign to Raise Awareness about a Life-threatening Disease Too Often Mistaken for Asthma
On the eve of its 25th anniversary year, the Pulmonary Hypertension Association (PHA) is mobilizing resources to let the public know about a progressive, life-threatening disease too often misdiagnosed as asthma.

Sept. 8, 2015

Three More Healthcare Facilities Receive New Pulmonary Hypertension Care Center Accreditation
Three Pulmonary Hypertension Care Centers (PHCCs) have recently completed the Pulmonary Hypertension Association’s rigorous accreditation review process. The newly accredited centers join 26 U.S. healthcare facilities to receive the Pulmonary Hypertension Association’s prestigious accreditation since last year when the new review program launched.

Aug. 28, 2015

79-Year-Old “Pacing Parson” on Cross-Country Charity Walk Making Headway from Detroit to Toledo
Ahead of his 80th birthday, Don Stevenson (AKA the Pacing Parson), a Seattle-area (Auburn, Wash.) retired minister and former U.S. Marine, will soon complete his 3,000-mile cross-country walk to raise awareness and money for the Pulmonary Hypertension Association (PHA).

Aug. 19, 2015

79-Year-Old “Pacing Parson” Passing through Detroit Three Months into Walk Across America for Pulmonary Hypertension Association (PHA)
Ahead of his 80th birthday, Don Stevenson (AKA the Pacing Parson), a Seattle-area (Auburn, Wash.) retired minister and former U.S. Marine, is walking from his home near Seattle, Wash., to Silver Spring, Md., near Washington, D.C., to raise awareness and money for the Pulmonary Hypertension Association (PHA).

July 28, 2015

Special Summer Camp Gives Pulmonary Hypertension Patients Experiences Typically Out of Reach for Kids with their Condition
Every July, since 2007, about 25 pediatric pulmonary hypertension (PH) patients experience a summer ritual most kids with the disease only experience through movies and television. They go to summer camp.

July 10, 2015

Medal of Honor Recipient Clint Romesha walks with 79-Year-old ‘Pacing Parson’
Medal of Honor Recipient, Staff Sergeant Clint Romesha, is meeting up with 79-year-old ‘Pacing Parson’ Don Stevenson in Minot, ND to join his walk to raise awareness and money for the Pulmonary Hypertension Association (PHA). Romesha will walk with Stevenson through his hometown of Minot, ND, on Saturday, July 11.

July 1, 2015

79-Year-old ‘Pacing Parson’ Passes 1,000-Mile Mark in Cross-Country Walk for Pulmonary Hypertension Association
Six months ahead of his 80th birthday, Don Stevenson has reached the 1,000 mile mark in his solo cross-country walk to raise awareness and money for the Pulmonary Hypertension Association (PHA). Stevenson began the walk in Washington State three weeks ago and expects to arrive at PHA’s headquarters near Washington, D.C. by mid-September.

June 8, 2015

Nine More U.S. Pulmonary Hypertension Care Centers Receive New Accreditation; Bringing Total to 26 Centers as Applications Continue to be Reviewed
With its announcement of nine more centers receiving Pulmonary Hypertension Care Center (PHCC) accreditation bringing the total to 26, the Pulmonary Hypertension Association (PHA) is hopeful as it seeks to improve overall care and outcomes for people with pulmonary hypertension (PH).

June 3, 2015

Ahead of 80th Birthday, “Pacing Parson” to Walk Across America for the Pulmonary Hypertension Association
Six months ahead of his 80th birthday, Don Stevenson (AKA the Pacing Parson), a Seattle-area (Auburn, Wash.) retired minister and former U.S. Marine, will walk across America to raise awareness and money for the Pulmonary Hypertension Association (PHA).

May 15, 2015

Pulmonary Hypertension Association’s Support of PH Research Grows to More than $15 Million with Latest Grant Opportunities
The Pulmonary Hypertension Association (PHA) approaches its 25th Anniversary in 2016 as the nation's leader in funding scientific research investigating ways to prevent and cure pulmonary hypertension (PH). PHA seeks applicants for its first round of 2015 research awards as it marks two decades of PH research support exceeding $15 million.

April 30, 2015

Pulmonary Hypertension Association Awards Tom Lantos Innovation in Community Service Awards to Community Activists Helping to Raise Awareness of Debilitating Lung Disease
The Pulmonary Hypertension Association (PHA) has awarded 12 committed community activists funding for projects to raise awareness of pulmonary hypertension (PH) – a debilitating disease of the lungs that affects the functioning of the heart and can lead to right heart failure.

April 27, 2015

Pulmonary Hypertension Association Marks World PH Day on May 5 with a Worldwide Lifesaving Social Media Blitz
On May 5, people living with pulmonary hypertension (PH) and their loved ones will ask their social media friends around the world to join their fight against a life-threatening disease too often dismissed as asthma.

April 13, 2015

Pulmonary Hypertension Association Launches New Social Network myPHA
Tool will Help Empower, Support and Celebrate the PH Community
The Pulmonary Hypertension Association has launched a new social network exclusively for its community of pulmonary hypertension (PH) patients. myPHA is designed as a one-stop-shop virtual home for all members of the PH community to gather, interact and get the education resources and community support they need to fight back against PH.

April 9, 2015

Pulmonary Hypertension Association Celebrates Donate Life Month
Group Encourages People to Become Organ Donors as it Promotes the Need for Early Diagnosis
Throughout April, the Pulmonary Hypertension Association (PHA) celebrates Donate Life Month and the importance of organ donation for many people living with pulmonary hypertension (PH).

April 7, 2015

Pulmonary Hypertension Association Receives Top Rating for 12th Consecutive Year from Charity Navigator, Nation’s Premier Charity Watchdog
For the 12th consecutive year, the Pulmonary Hypertension Association has received a four-star rating from Charity Navigator, the premier evaluator of charities in the United States. This highest designation indicates that PHA adheres to good governance, sound fiscal management, commitment to accountability and transparency, and other best practices, consistently executing its mission in a fiscally responsible way.

April 2, 2015

Former U.S. Army Ranger’s Story Will Encourage Americans to ‘Face their PHears' for the Pulmonary Hypertension Association (PHA)
When he was 10, Carl Hicks fell from a tree and seriously fractured his left wrist. The tumble left him so afraid of heights that he couldn’t stand on a kitchen chair to get a glass from the cupboard. Nearly a decade later, the U.S. Army Ranger School forced Hicks to face his fear head-on.

March 26, 2015

Pulmonary Hypertension Association Part of Coalition Supporting the Patients’ Access to Treatment Act
The Pulmonary Hypertension Association (PHA) fully supports the Patients’ Access to Treatments Act (PATA) that was introduced in the House of Representatives this week by Reps. David B. McKinley (R-WV) and Lois Capps (D-CA). This important bi-partisan legislation will limit cost-sharing requirements for medications placed in a specialty tier and make life-saving medications more accessible by reducing patients’ out-of-pocket expenses.

March 26, 2015

Albuquerque Area Mom Enters Mrs. New Mexico Pageant to Help Fight Pulmonary Hypertension
Los Lunas, N.M., resident Lyndsi Alderete never thought of participating in a pageant. Not until last year, when she attended a pageant and had an idea. Lyndsi’s daughter Eliana has pulmonary hypertension (PH) – a debilitating disease of the lungs that affects the functioning of the heart and can lead to right-heart failure.

Feb. 18, 2015

Pulmonary Hypertension Association’s Team O2 breathe Helps Participants Push Their Limits as They Race to Cure Rare Lung Disease
Team O2 breathe, the athletic awareness arm of the Pulmonary Hypertension Association (PHA), is looking for individuals to participate in events and fight back against pulmonary hypertension (PH). PH is a rare, debilitating disease of lungs that affects the functioning of the heart and can lead to right heart failure. Without treatment, the average survival rate is only 2.8 years.

Jan. 26, 2015

Pulmonary Hypertension Association Accredits Eleven New PH Care Centers, Including First Pediatric Program
Online Application Now Available
The Pulmonary Hypertension Association has accredited eleven new Pulmonary Hypertension Care Centers (PHCC), bringing the total number of PHCCs to 17, in a program that seeks to improve overall quality of care and ultimately improve outcomes of patients with pulmonary hypertension (PH), specifically pulmonary arterial hypertension (PAH) – a rare and debilitating disease of the lungs that affects the functioning of the heart and can lead to right heart failure. Without treatment, mean survivability is only 2.8 years.

Browse the PHA Press Release Archive

 

 

FacebookTwitterInstagram iconLinkedInYouTube

For optimal viewing of PHAssociation.org, please use a standards-compliant browser such as Google Chrome or Firefox.

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs. PHA does not endorse or recommend any commercial products or services.

801 Roeder Road, Ste. 1000, Silver Spring, MD 20910   Patient-to-Patient Support Line: 1-800-748-7274
Webmaster@PHAssociation.org
    Privacy Policy    Provide Feedback & Report Bugs

Designed by Matrix Group International, Inc.® | © 2016 Pulmonary Hypertension Association. All Rights Reserved.

NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.