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Renée Hockaday
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Press Releases

July 28, 2015

Special Summer Camp Gives Pulmonary Hypertension Patients Experiences Typically Out of Reach for Kids with their Condition
Every July, since 2007, about 25 pediatric pulmonary hypertension (PH) patients experience a summer ritual most kids with the disease only experience through movies and television. They go to summer camp. Read full press release

July 10, 2015

Medal of Honor Recipient Clint Romesha walks with 79-Year-old ‘Pacing Parson’
Medal of Honor Recipient, Staff Sergeant Clint Romesha, is meeting up with 79-year-old ‘Pacing Parson’ Don Stevenson in Minot, ND to join his walk to raise awareness and money for the Pulmonary Hypertension Association (PHA). Romesha will walk with Stevenson through his hometown of Minot, ND, on Saturday, July 11. Read full press release

July 1, 2015

79-Year-old ‘Pacing Parson’ Passes 1,000-Mile Mark in Cross-Country Walk for Pulmonary Hypertension Association
Six months ahead of his 80th birthday, Don Stevenson has reached the 1,000 mile mark in his solo cross-country walk to raise awareness and money for the Pulmonary Hypertension Association (PHA). Stevenson began the walk in Washington State three weeks ago and expects to arrive at PHA’s headquarters near Washington, D.C. by mid-September. Read full press release

June 8, 2015

Nine More U.S. Pulmonary Hypertension Care Centers Receive New Accreditation; Bringing Total to 26 Centers as Applications Continue to be Reviewed
With its announcement of nine more centers receiving Pulmonary Hypertension Care Center (PHCC) accreditation bringing the total to 26, the Pulmonary Hypertension Association (PHA) is hopeful as it seeks to improve overall care and outcomes for people with pulmonary hypertension (PH). Read full press release

June 3, 2015

Ahead of 80th Birthday, “Pacing Parson” to Walk Across America for the Pulmonary Hypertension Association
Six months ahead of his 80th birthday, Don Stevenson (AKA the Pacing Parson), a Seattle-area (Auburn, Wash.) retired minister and former U.S. Marine, will walk across America to raise awareness and money for the Pulmonary Hypertension Association (PHA). Read full press release

May 15, 2015

Pulmonary Hypertension Association’s Support of PH Research Grows to More than $15 Million with Latest Grant Opportunities
The Pulmonary Hypertension Association (PHA) approaches its 25th Anniversary in 2016 as the nation's leader in funding scientific research investigating ways to prevent and cure pulmonary hypertension (PH). PHA seeks applicants for its first round of 2015 research awards as it marks two decades of PH research support exceeding $15 million. Read full press release

April 30, 2015

Pulmonary Hypertension Association Awards Tom Lantos Innovation in Community Service Awards to Community Activists Helping to Raise Awareness of Debilitating Lung Disease
The Pulmonary Hypertension Association (PHA) has awarded 12 committed community activists funding for projects to raise awareness of pulmonary hypertension (PH) – a debilitating disease of the lungs that affects the functioning of the heart and can lead to right heart failure. Read full press release

April 27, 2015

Pulmonary Hypertension Association Marks World PH Day on May 5 with a Worldwide Lifesaving Social Media Blitz
On May 5, people living with pulmonary hypertension (PH) and their loved ones will ask their social media friends around the world to join their fight against a life-threatening disease too often dismissed as asthma. Read full press release

April 13, 2015

Pulmonary Hypertension Association Launches New Social Network myPHA
Tool will Help Empower, Support and Celebrate the PH Community
The Pulmonary Hypertension Association has launched a new social network exclusively for its community of pulmonary hypertension (PH) patients. myPHA is designed as a one-stop-shop virtual home for all members of the PH community to gather, interact and get the education resources and community support they need to fight back against PH. Read full press release

April 9, 2015

Pulmonary Hypertension Association Celebrates Donate Life Month
Group Encourages People to Become Organ Donors as it Promotes the Need for Early Diagnosis
Throughout April, the Pulmonary Hypertension Association (PHA) celebrates Donate Life Month and the importance of organ donation for many people living with pulmonary hypertension (PH). Read full press release

April 7, 2015

Pulmonary Hypertension Association Receives Top Rating for 12th Consecutive Year from Charity Navigator, Nation’s Premier Charity Watchdog
For the 12th consecutive year, the Pulmonary Hypertension Association has received a four-star rating from Charity Navigator, the premier evaluator of charities in the United States. This highest designation indicates that PHA adheres to good governance, sound fiscal management, commitment to accountability and transparency, and other best practices, consistently executing its mission in a fiscally responsible way. Read full press release

April 2, 2015

Former U.S. Army Ranger’s Story Will Encourage Americans to ‘Face their PHears' for the Pulmonary Hypertension Association (PHA)
When he was 10, Carl Hicks fell from a tree and seriously fractured his left wrist. The tumble left him so afraid of heights that he couldn’t stand on a kitchen chair to get a glass from the cupboard. Nearly a decade later, the U.S. Army Ranger School forced Hicks to face his fear head-on. Read full press release

March 26, 2015

Pulmonary Hypertension Association Part of Coalition Supporting the Patients’ Access to Treatment Act
The Pulmonary Hypertension Association (PHA) fully supports the Patients’ Access to Treatments Act (PATA) that was introduced in the House of Representatives this week by Reps. David B. McKinley (R-WV) and Lois Capps (D-CA). This important bi-partisan legislation will limit cost-sharing requirements for medications placed in a specialty tier and make life-saving medications more accessible by reducing patients’ out-of-pocket expenses. Read full press release

March 26, 2015

Albuquerque Area Mom Enters Mrs. New Mexico Pageant to Help Fight Pulmonary Hypertension
Los Lunas, N.M., resident Lyndsi Alderete never thought of participating in a pageant. Not until last year, when she attended a pageant and had an idea. Lyndsi’s daughter Eliana has pulmonary hypertension (PH) – a debilitating disease of the lungs that affects the functioning of the heart and can lead to right-heart failure. Read full press release

Feb. 18, 2015

Pulmonary Hypertension Association’s Team O2 breathe Helps Participants Push Their Limits as They Race to Cure Rare Lung Disease
Team O2 breathe, the athletic awareness arm of the Pulmonary Hypertension Association (PHA), is looking for individuals to participate in events and fight back against pulmonary hypertension (PH). PH is a rare, debilitating disease of lungs that affects the functioning of the heart and can lead to right heart failure. Without treatment, the average survival rate is only 2.8 years. Read full press release

Jan. 26, 2015

Pulmonary Hypertension Association Accredits Eleven New PH Care Centers, Including First Pediatric Program
Online Application Now Available
The Pulmonary Hypertension Association has accredited eleven new Pulmonary Hypertension Care Centers (PHCC), bringing the total number of PHCCs to 17, in a program that seeks to improve overall quality of care and ultimately improve outcomes of patients with pulmonary hypertension (PH), specifically pulmonary arterial hypertension (PAH) – a rare and debilitating disease of the lungs that affects the functioning of the heart and can lead to right heart failure. Without treatment, mean survivability is only 2.8 years. Read full press release

Dec. 10, 2014

Pulmonary Hypertension Association Receives Grant from eBay, Inc.
A recent grant to the Pulmonary Hypertension Association (PHA) from eBay, Inc., will help bring pulmonary hypertension patients to PHA’s Biennial International Conference and Scientific Sessions. Read full press release

Nov. 18, 2014

Pulmonary Hypertension Association Launches First Annual CTEPH Awareness Day
The Pulmonary Hypertension Association (PHA) has launched the first-ever CTEPH Awareness Day to raise awareness about Chronic Thromboembolic Pulmonary Hypertension (CTEPH) - a form of pulmonary hypertension that is caused by old, organized blood clots in the lungs. Pulmonary hypertension (PH) is a rare and debilitating disease of the lungs that affects the functioning of the heart and can lead to right heart failure. Read full press release

Nov. 13, 2014

Pulmonary Hypertension Research and Diagnosis Act Focus of PHA Advocacy Day and Congressional Luncheon
Pulmonary hypertension (PH) patients from around the country, accompanied by staff from the Pulmonary Hypertension Association (PHA), are meeting with Members of Congress today to shed light on the everyday struggles of the PH patient and encourage their co-sponsorship of the Pulmonary Hypertension Research and Diagnosis Act (H.R. 2073, S. 1453). Pulmonary hypertension is a rare and debilitating disease of the lungs that affects the functioning of the heart and can lead to right heart failure. Without treatment, average survivability is only 2.8 years. Read full press release

Nov. 11, 2014

Marathoner, Rosanne Huber, Credits Early Detection by Dr. Pasha Sarraf with Saving her from Rare, Debilitating Lung Disease
The Pulmonary Hypertension Association connected with avid runner, Rosanne Huber on the devastating diagnosis that nearly brought her life to a crashing halt. Luckily, early diagnosis of pulmonary hypertension (PH) by Dr. Pasha Sarraf and referral to an expert center halted the progression of this devastating disease. Pulmonary hypertension, often described as high blood pressure in the lungs, is a rare debilitating disease that affects the functioning of the heart and can lead to right heart failure. Without treatment, the average survival rate is only 2.8 years. Ms. Huber shares her story.

Nov. 6, 2014

Pulmonary Hypertension Association Premiers New Public Service Announcement on Times Square’s NASDAQ Tower, PSAs Playing in New York City Taxicabs
The Pulmonary Hypertension Association will hit center stage today to air a new public service announcement (PSA) on the largest screen in the world, Times Square's NASDAQ Tower. The PSA will help raise awareness of pulmonary hypertension (PH), a rare and debilitating disease of the lungs that affects the functioning of the heart and can lead to right heart failure. Without treatment, average survivability is only 2.8 years.

Oct. 23, 2014

November is Pulmonary Hypertension Awareness Month
Are You PHAware?
The Pulmonary Hypertension Association has designated November as Pulmonary Hypertension Awareness Month and every November we work to light the way to a better tomorrow through research, fundraising and advocacy and awareness of pulmonary hypertension (PH)– a rare and debilitating disease of the lungs that affects the functioning of the heart and can lead to right heart failure. Without treatment, the average survival rate is only 2.8 years.

Sept. 29, 2014

Pulmonary Hypertension Association Accredits First Six PH Care Centers Application Process Now Open
The Pulmonary Hypertension Association recently accredited and announced its first six Pulmonary Hypertension Care Centers (PHCC). These six centers participated in the PHCC Pilot Program, which helped to solidify the accreditation criteria and to refine the process for reviewing future candidate Centers. The PHCC application period officially opened on Monday, September 29 and the application is now available for downloading. The program seeks to improve overall quality of care and ultimately improve outcomes of patients with pulmonary hypertension (PH), specifically pulmonary arterial hypertension (PAH) - a rare and debilitating disease of the lungs that affects the functioning of the heart and can lead to right heart failure. Without treatment, mean survivability is only 2.8 years. Read full press release

Sept. 3, 2014

American College of Chest Physicians Endorse Accreditation of PH Care Centers by the Pulmonary Hypertension Association
The Pulmonary Hypertension Association and its Scientific Leadership Council have spearheaded a quality improvement initiative to accredit Pulmonary Hypertension Care Centers (PHCC) across the country. These centers are committed to providing high-quality care based on broadly accepted standards of care and consensus guidelines. Read full press release

Aug. 27, 2014

Pulmonary Hypertension Association Endorses CHEST Guidelines for Treatment of Pulmonary Arterial Hypertension in Adults
The American College of Chest Physicians (CHEST) recently released guidelines for the management and treatment of pulmonary arterial hypertension (PAH) in adults, Pharmacological Therapy for Pulmonary Arterial Hypertension in Adults: CHEST Guideline, in the journal CHEST. Read full press release

Aug. 25, 2014

Pulmonary Hypertension Association Goes on the Road to Houston with an Education Forum for PH Patients and Families to Help Fight Rare Lung Disease
PHA on the Road is a free full-day regional education forum that delivers much needed PH education and support to patients and families in areas close to home. Read full press release

July 23, 2014

Stephen L. White Takes Helm as Chair of Pulmonary Hypertension Association Board of Trustees
Dr. Stephen L. White of Hancock, Mass., recently took the helm as Chair of the Board of Trustees for the Pulmonary Hypertension Association. Read full press release

July 16, 2014

Tom Lantos Innovation in Community Service Awards Given by Pulmonary Hypertension Association to Advance Awareness of Rare Lung Disease
The Pulmonary Hypertension Association (PHA) has awarded 13 committed community activists funding for projects to raise awareness of pulmonary hypertension (PH) - a rare, debilitating disease of the lungs that affects the functioning of the heart and can lead to right heart failure. Without treatment, mean survivability is only 2.8 years. Read full press release

July 8, 2014

Washington University School of Medicine’s Dr. Murali Chakinala Receives Outstanding Physician Award from Pulmonary Hypertension Association
The Pulmonary Hypertension Association (PHA), the nation’s leading pulmonary hypertension organization, presented Murali Chakinala, MD, FCCP, with its Outstanding Physician Award during PHA’s 11th Biennial Conference and Scientific Sessions June 20-22, 2014. Conference helps to foster networking and bring hope to patients, caregivers and medical professionals working to live with and find a cure for pulmonary hypertension – a disease of the lungs that affects the functioning of the heart and can lead to right heart failure. Without treatment, mean survivability is only 2.8 years. Read full press release

June 16, 2014

Pulmonary Hypertension Association to Hold International Conference and Scientific Sessions in Indianapolis as Patients, Caregivers and Medical Professionals Race for a Cure
Pulmonary Hypertension Association (PHA), the nation's leading pulmonary hypertension organization, is meeting in Indianapolis, Ind., June 20-22 to educate, foster networking and bring hope to patients, caregivers and medical professionals working to live with and find a cure for pulmonary hypertension. Read full press release

June 4, 2014

Pulmonary Hypertension Association Supports Team Phenomenal Hope as it Prepares to Race Across America and Bring Awareness to Rare Lung Disease
Beginning on June 14, 2014, Team Phenomenal Hope, a Pittsburgh, Pa.-based cycling team consisting of a lung transplant physician and three other women, is competing in the high-endurance cycling event, Race Across America (RAAM), to raise awareness of pulmonary hypertension (PH). The race kicks off from Oceanside, Calif., and will end in Annapolis, Md. Read full press release

Feb. 24, 2014

Discovery of Genetic Mutations That Cause Deadly Lung Disease Applauded by Patient Organization
A team of researchers, led by physicians and scientists at Intermountain Healthcare's Intermountain Medical Center and ARUP Laboratories, has made a medical breakthrough by discovering genetic mutations that cause a rare and deadly lung disease. Read full press release

 

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