MEDIA GUIDE

Tips for a Successful Interview

Know your talking points

Pulmonary hypertension (PH) is continuous high blood pressure in the pulmonary artery leading to the lungs which results in an enlarged heart which can lose its ability to pump.

    • PH is a chronic, life-altering disease
      PH affects people in the prime of their lives. There is no known cure for PH, but new research and treatments are increasing longevity and hope.
    • 20-30,000 people in the U.S. receive PAH-specific therapy
      Many more likely have the disease but have not yet been diagnosed. 
    • Women are four times more likely than men to be diagnosed with IPAH in the U.S. 
      However, individuals of all ages, races and genders may develop the disease. 
    • Pulmonary hypertension is a misdiagnosed disease 
      PH is often misdiagnosed as asthma, congestive heart disease or chronic bronchitis. Many patients visit three or more physicians over 2.8 years before being diagnosed. 
    • Treatment can be costly 
      Some PH therapies cost upwards of $100,000/year and many patients are prescribed more than one PH therapy. 
    • Awareness and early diagnosis can save lives 
      Research shows that if patients are diagnosed and treated in the early stages of PH, disease progression can be delayed, improving both survival and quality of life. 12 treatments are now available. 

Be concise when answering questions

Provide “soundbites,” which are targeted statements that get to the heart of the issue. Reporters often use them as quotes in their stories. You can create sound bites with just a few words, such as:

  • “It’s a life-threatening type of high blood pressure that no one knows about.”
  • “My doctor said it was asthma, but I didn’t feel better.”
  • “I have to wear a pump going into my heart all day and all night.”
  • “No one can see how sick I really am.”
  • “After leading an active, vibrant lifestyle, I suddenly found myself immobilized!”

Share the ways in which PH has affected your life

If you’re comfortable discussing your experience during the diagnostic process, the financial impact of PH, your prognosis or the ways in which PH affects your daily life, share this information. It will help reporters and audiences understand what it means to live with PH.

Relax and have fun!

This is your chance to educate your community about a disease that you or your loved one lives with every day. No one is a better expert on PH than you! 

For help preparing your media outreach (station contact information and additional information about the campaign) contact: ProjectPSA@PHAssociation.org

Renee Hockaday at 301-565-3004 x774 or ReneeH@PHAssociation.org
or Diane Ramirez at 336-425-6335 or diramirez87@yahoo.com

What Should I Expect During an Interview? 

patient being interviewed
Many are surprised that a typical interview with a reporter is a lot like a conversation with a friend. Watch this mock interview between Kristen, a PH parent, and Jessica Sanchez, reporter and anchor, WKMG-TV Orlando to see what you can expect during a typical interview.   

Watch the mock interview

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.