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PHA Research Room

PHA's International PH Conference provides researchers access to the largest gathering of PH patients in the world.

Patient in research room

Each biennial meeting of PHA's International PH Conference and Scientific Sessions includes a Research Room dedicated to helping researchers further their studies by allowing for the collection of data, including biological specimens (cheek swabs and blood samples) from PH patients. The first Research Room was held in 1994 at PHA's International PH Conference in Stone Mountain, Ga. That first gathering brought together almost 70 patients. At the 10th PHA International PH Conference in 2012 in Orlando, Fla., PHA hosted 9 research teams from all over the U.S., with more than 230 attendees participating in our Research Room.

This event gives researchers the rare opportunity to collect data from the largest gathering of pulmonary hypertension patients in the world at any given time, and the work researchers have done at PHA's Research Room has made a difference in the field of pulmonary hypertension.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.