Media Coverage 

Approaching the Holidays, Marathon Runner Anthony Piatek Remembers His Mother
Dec. 13, 2013 (Chicago Sun-Times) - Often, PH isn't detected in a routine physical exam in adults and children. Its symptoms can be misdiagnosed as asthma, lack of phycial fitness, or COPD, amonth other things, even in its more advanced stages. Read article

November: Pulmonary Hypertension Awareness Month
November (Costco Connection Magazine) - Diagnosis of PH is so difficult because many other diseases - including congestive heart failure, asthma or chronic obstructive pulmonary disease - also have these same symptoms, and need to be ruled out before a PH diagnosis is made. Read article

Pulmonary Arterial Hypertension Can be Hard to Diagnose, but can be Fatal if Left Untreated
Nov. 4, 2013 (Washington Post) - The symptoms mimic so many other diseases that it usually takes about two years from the onset of exertional shortness of breath (60 percent of patients) or fatigue (20 percent of patients) for the correct diagnosis to emerge. Read article

Ending Misdiagnosis of Pulmonary Arterial Hypertension, an RT’s Role
Sept., 2013 (AARC Times) - Many respiratory therapy patients with a diagnosis of asthma or COPD may have been wondering for months why they have continued to be symptomatic despite their medications. As a respiratory therapist, asking whether the patient has been assessed for pulmonary arterial hypertension could save a life. Read article (PDF)

Unexplained Breathlessness Not Okay Say Australian Doctors
Sept. 3, 2013 (The Australian) - Doctors from the Pulmonary Hypertension Society in Australia highlight the importance of early diagnosis by stressing that unexplained breathlessness can be something very serious. Read article

Newsmaker: Dr. Patricia George
Aug. 24, 2013 (TRIB LIVE) - “It's important for medical professionals to know about pulmonary hypertension because we, as doctors, need at least to think about it when we diagnose a patient who presents with shortness of breath. If we don't think about it, we won't make the diagnosis.” Read article

New Insights Into Pulmonary Hypertension
Aug. 13, 2013 (The Lancet) - A US Food and Drug Administration (FDA) committee recommended approval of a new pulmonary hypertension drug riociguat on Aug. 6.  This latest drug is part of an "explosion" of treatments for PH over the past 20 years that has led the Pulmonary Hypertension Association to address a new concern, early diagnosis, to make best use of the range of drugs available. Read article

West Goshen Woman Fights Back Against Rare Lung Disease
July 29, 3013 (Daily Local News) - For three years, Colleen Connor's doctors had been testing her lungs and treating her for asthma. But on the night before Thanksgiving 2007, the echocardiogram of her heart eventually led to the correct diagnosis - pulmonary hypertension. She is one of the many women of childbearing age who have developed this rare and serious illness shortly after childbirth, and one of many more patients who are misdiagnosed for years before receiving the right treatment. Read article

Pulmonary Hypertension - Early diagnosis is essential to treat this life-threatening disease
April 17, 2013 (Advance for Respiratory Care & Sleep Medicine) - Shortness of breath, chest pain, fatigue, fainting-all are common symptoms seen regularly in medical practices. ...Yet when patients receiving respiratory therapy don’t improve, a respiratory therapist can play a critical role by considering these common symptoms a sign of rare pulmonary hypertension. Read article

Can You Recognize PH?
Nov. 13,2012 (Healthcare Journal of New Orleans) - Pulmonary Hypertension and a new initiative to build awareness of the condition is one of the topics being discussed at the 2012 American Association or Respiratory Care (AARC) International Respiratory Congress being held this week in New Orleans. Read article

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

© 2014 Pulmonary Hypertension Association. All Rights Reserved.

801 Roeder Road, Ste. 1000, Silver Spring, MD 20910   Patient-to-Patient Support Line: 1-800-748-7274
Webmaster@PHAssociation.org
    Privacy Policy   Provide Feedback & Report Bugs

NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.