Messages You Can Use to Spread Awareness

Helping doctors to recognize PH sooner and alerting patients to ask about a PH diagnosis are central goals of the Early Diagnosis Campaign. Reaching these goals will require a broad effort from the PH community over the course of a number of years. Here we provide some messages you can use to communicate about the campaign so you can reach a variety of people who may have PH and do it on a regular basis. We hope they inspire your own creativity.

Choose a message, or write one of your own. Then at the end, add a link to either the campaign website, www.SometimesItsPH.org, or the campaign video, at www.PHAssociation.org/SometimesItsPHVideo.

Messages for Facebook or similar social network

  • Are you breathless or dizzy upon standing, climbing stairs, straightening up from a bent position, or even while just sitting? You could have pulmonary hypertension, a rare, chronic illness doctors often overlook. Learn more
     
  • Have you been diagnosed with asthma, but find that treatment isn't working? It could be pulmonary hypertension. While symptoms are similar in both diseases, PH is a rare, serious illness often mistaken for asthma. Learn more
     
  • Breathlessness, chest pain, dizziness, fainting and fatigue can mean you have a common ailment, but sometimes it's pulmonary hypertension. Learn more
     
  • Breathlessness, swelling of the arms or legs, dry cough, and Raynaud’s phenomenon (chalky white or dusky blue fingers that may be painful) can mean you have a common ailment, but sometimes it's pulmonary hypertension. Learn more
     
  • People diagnosed with asthma, COPD or sleep apnea who don’t feel better with treatment may have pulmonary hypertension, or PH. PH patients are often misdiagnosed more than once before receiving proper care. Learn more

  • Have you been diagnosed with pulmonary hypertension? How long did it take to reach this diagnosis? Were you misdiagnosed first? Share your story
      
  • Women in the U.S. are four times more likely than men to be diagnosed with idiopathic pulmonary arterial hypertension (IPAH), a serious illness often mistaken for asthma, COPD or sleep apnea. Yet PAH can affect both sexes and all ages and races. Learn more
     
  • Pulmonary hypertension can develop from diseases that affect millions of people including sleep apnea, scleroderma, sickle cell disease, HIV, chronic obstructive pulmonary disease (COPD), hereditary hemorrhagic telangiectasia (HHT), liver disease and lupus. If you or someone you know has one of these illnesses learn more
     
  • Pulmonary hypertension can develop from diseases that affect millions of people including scleroderma, chronic obstructive pulmonary disease (COPD), mixed connective-tissue disease, congenital heart disease (CHD) and hereditary hemorrhagic telangiectasia (HHT). If you or someone you know has one of these illnesses learn more
     
  • Has your doctor said you might have pulmonary hypertension? Request a right heart catheterization to be sure. A PH specialist, working together with your doctor, is the best source of diagnosis and treatment to slow the progression of this disease. Learn more

Shorter Messages for Twitter

  • Are you dizzy upon standing, climbing stairs, or even while just sitting? You could have pulmonary hypertension. www.SometimesItsPH.org
     
  • Have you been diagnosed with asthma but treatment isn't working? It could be pulmonary hypertension. www.SometimesItsPH.org
     
  • Breathlessness, chest pain or dizziness may indicate asthma or COPD, but sometimes it's pulmonary hypertension. www.SometimesItsPH.org
     
  • Pulmonary hypertension is a rare disease with common symptoms like dizziness and breathlessness. Avoid misdiagnosis. www.SometimesItsPH.org
     
  • U.S. women are 4 times more likely than men to be diagnosed with idiopathic pulmonary arterial hypertension (IPAH). www.SometimesItsPH.org
     
  • Have you been diagnosed with pulmonary hypertension? Share your story of diagnosis. www.SometimesItsPH.org
     
  • Pulmonary hypertension can develop from COPD, sickle cell disease, HIV, sleep apnea and lupus. About PH diagnosis: www.SometimesItsPH.org
     
  • Has your doctor said you might have pulmonary hypertension? Request a right heart catheterization to be sure. www.SometimesItsPH.org

Spread the Word

Sometimes it's PH campaign video
Share the video: www.PHAssociation.org/
SometimesItsPHVideo
 

Somtimes It's PH
Share the campaign website link: www.SometimesItsPH.org

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.