Our Journeys

Patient Story

Violet Ladd

My story starts out in July of 2006 while I was working 12 hour shifts as a certified nurses aide. My breathing became harder at times and while at a doctor's visit with my husband, I told the doctor about my problem. He said i should have a chest xray and an electrocardiogram so the next day that's what we did. He told me the right side of my heart was almost twice its normal size. He said I should have an echocardiogram done and after that I was told I had stage 4 pulmonary hypertension (PH). I didn't have medical insurance. I had to go to a local county hospital where I was put on 4 liters of oxygen.

When I was approved for state medical assistance I was then sent to a specialist right away. I was put on Flolan and was told that the next and only other thing would be a heart and lung transplant. I have a great family support team and great doctors. After 4 years I was taken off of oxygen. Eleven months later I was taken off of Flolan and am still doing good. The only PH med that I am on now is the Letairis. Great things do happen and I praise GOD every day for finding the right doctors for me because prior to being diagnosed I was always told I had Bronchitis.

 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.