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PH community members have planned a wide variety of exciting events in their hometowns! When deciding on the kind of event to host, consider your resources and what you would most enjoy planning.
This chart gives you an idea of time, funding and volunteer commitments needed for common types of PHA special events.
One thing puts the “special” in PHA’s Special Events program: each event is unique, reflecting the local community and personality of each volunteer organizer. In addition to the list of events above, volunteer special event organizers have hosted kite festivals, carnivals, art sales, cut-a-thons and casino nights!
No matter what event you choose, PHA will be here to help.
Types of Events
Karen Puopolo and her son plan an annual Bocce Tournament (a popular Italian lawn game) for PHA
“I don’t think there are many bocce tournaments around, so it’s rather unique and lots of fun. For anyone thinking of doing a similar event, all I can say is go for it! We didn’t have a clue what we were doing at first and yet things worked out better than I could have ever expected.” - Karen
Connect with our nationwide network of volunteer special events organizers. PHA's Special Events Forum is an email group for sharing and receiving planning tips, advice and encouragement!
Join PHA's Special Events Forum (Requires a free Google account. Please allow a short delay while your group membership is processed.)
The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.
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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.