Special Events Stories & Photos

“Cruisin’ for a Cause”: Niece Organizes Fundraiser in Honor of Her Aunt
Lake Minnetonka, Minn., May, 2012

"Cruisin' for a Cause" attendees"Cruisin' for a Cause" attendees

Jeanne Matre is very close with her aunt, Liz Brigham, who was diagnosed with PH in 2004. Jeanne says she thought about organizing a fundraiser for a while and was excited when her employer,, a global TV parts distributor, was receptive to hosting a workplace fundraiser. already made charitable contributions every year. Jeanne simply took the philanthropic culture a step further and planned an exciting fundraiser to benefit PHA.

On May 19, 2012, Jeanne and the staff at went “Cruisin’ for a Cause.” They gathered for dinner and a chartered cruise around Lake Minnetonka in Minnesota to have fun, learn about PH and raise $800 for PHA.

“PHA helped Aunt Liz so much and has been a great organization for support. PHA is kind of a big deal in the family. It’s something we always think about,” Jeanne says.

During “Cruisin’ for a Cause,” Jeanne passed out periwinkle T-shirts and Phenomenal Hope bracelets so everyone could promote PHA and at the fundraiser and afterward. Jeanne even made PH-themed cupcakes with fondant hearts and the PHA logo! “Cruisin’ for a Cause” was a surprise to Liz, but next year Liz and Jeanne want to make the event bigger and include more of the community.

Jeanne’s advice for anyone interested in planning a workplace fundraiser is to be persistent. Jeanne says, “Talk to the people in charge and express how important fundraising is to you.”

Learn more about fundraising in the workplace


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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.