Special Events Stories & Photos

Fresno Six-Minute Marathon
Fresno, Calif., November, 2012

Volunteer organizers held the Fresno Six-Minute Marathon on Nov. 4 raising awareness and more than $2,600 for PHA research and patient-serving programs. Event Chair Perry Mamigonian had this to report: “It was a perfect day! We had more than 70 people show up, the weather was beautiful, the food was great, and everyone enjoyed themselves. We even had a young couple bring their pediatric patient daughter from 90 miles away. Her mother told me she found out about our event on the Internet on the PHA website and decided to come at the last minute because they have no support groups where they live.”

Fresno Six-Minute Marathon participants



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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.