Special Events Stories & Photos

Messages of Hope: An Evening with Psychic Medium Josephine Ghiringhelli
Long Island, N.Y, August, 2012

The Suffolk Chapter of the Long Island, N.Y., PH Support Group hosted its first event this past summer. Spearheaded by Linda Sullivan, Lisa Perrotta, Lori O’Berry and Joanne Schmidt, the event featured a group reading with the psychic medium, delicious hors d’ouevres and a Chinese auction. It raised more than $7,000 for PH research and patient and family serving programs and was in such high demand that it sold out with more than 140 guests!

Messages of Hope participants


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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.