Special Events Stories & Photos

Thirsting for a Cure
Newberg, Oregon, September 22, 2012

From left: Cindy Gotlib, Bridie Halbach and Debra Watkins work the registration table outside the beautiful Alexana Winery in Newberg, Oregon

From left: Cindy Gotlib, Bridie Halbach and Debra Watkins work the registration table outside the beautiful Alexana Winery in Newberg, Ore., at the inaugural Thirsting for a Cure wine-tasting fundraiser on Sept. 22. This instrumental fundraiser, led by Carl Hicks with the support of the Portland Metro PH Support Group and many others, raised more than $110,000 to directly benefit the Robyn Barst Pediatric PH Research and Mentoring Fund at PHA.

Making history

As a direct result of Thirsting for a Cure’s success, the Robyn Barst Fund reached its first $1,000,000 goal, opening the doors to the first-ever pediatric research fund for PH. Read more about the Robyn Barst Fund

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.