Special Events Stories & Photos

Zumbathon for PH
Canton, Conn., November 2012

Colleen Brunetti at her 2nd Annual Zumbathon for PHPulmonary hypertension patient and PHA board member Colleen Brunetti hosted her 2nd Annual Zumbathon for PH in November 2012 in time for PH Awareness Month. The Zumbathon kicked off with 50 participants and raised more than $5,000 for PHA’s research and patient-serving programs.

Colleen has this to report:

“The Zumbathon was a great success!

50 participants and 5 instructors were treated to a complementary raffle, listened to a brief overview of PH, danced for about 75 minutes, and finished off with refreshments and lots of photo ops. Participants took home gift bags with literature on PH and the Zebra [Early Diagnosis] Campaign, as well as a few treats. About 15 people later gathered at a local wine bar for a post-event toast.

With the guidance of PHA staffer Joshua Griffis, several attendees also signed letters requesting [U.S. Congressional] co-sponsorship for the [Tom Lantos PH Research and Education Act] bill.”

Zumbathon for PH participants Zumbathon for PH participants

Photos courtesy of Amharc Photography

 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.