Amanda McKee
Leader
314-831-4520
783 Mediterranean Florissant, MO 63031 mharv78@hotmail.com
Support
Group Description
Our goal is to meet at least 6 times a year. We try to hold meetings every other month, on Saturday afternoons. We emphasize education, outreach, and awareness at our meetings. If you are unable to attend, and would like more information on the topic, please contact Amanda. If you are newly diagnosed and would like more information, please feel free to email or call.
Events
Missed, But Not Forgotten....
I'm sorry to report that the St. Louis PHA Support Group Leader, Misty Jackson has lost her hard-fought battle with PH on Monday June 8, 2009. Because of the sudden notice and speed with which everything is happening, we've chosen to take up a collection and make a donation to PHA in Misty's name. If you choose to make a donation, make the check out to PHA and in the memo line, add "Memory of Misty Jackson". Mail it to Amanda at the address listed above. I'll send them into PHA. Here is a link to her obituary at the local funeral home: http://obit.baue.com/obitdisplay.html?id=678818&listing=Current
It's been a tough summer, as we also lost Shanda Robertson. Many of you knew her from a few meetings that she & her mother were able to attend. She passed in early July and her family will hold a 'Celebration of Life' ceremony on September 13, 2009 @ 2pm. It will be at the St. Joseph Chapel, in St. Mary's High School, 4701 S. Grand, St. Louis, MO 63111. Everyone is asked to wear their Cardinals gear or the color red in support of Shanda's love for the hometeam. There will be a luncheon afterwards, as well as a mini health-fair. If you are interested in attending, please let me know if you'll be attending by September 1.
Ms Jane Papp passed Saturday August 1, 2009 after a long hard fought battle with Pulmonary Hypertension. Donations can be made to the charity of one's choice.
3rd Patient Pulmonary Vascular Symposium-Kansas City, MO
Pulmonary Hypertension Symposium: Patient Education Friday, October 2, 2009 12:305 p.m. Embassy Suites on the Plaza Kansas City, Missouri
Program Overview Join us in Kansas City to discuss both medical and non-medical issues related to your condition. Meet and mingle with others who live with Pulmonary Hypertension and all the complications this brings to daily living. The event will include plenary sessions with keynote speakers as well as small breakout sessions conducted by health care professionals and patients.
Lodging A block of rooms has been reserved at the Q Hotel & Spa (http://theqhotel.com/), formerly known as the Quarterage Hotel, at the daily rate of $89 for single or double occupancy. To take advantage of the special rate, call 816-931-0001 or 1-800-942-4233 and mention that you will be attending the KU Medical Center program. Make reservations early, as room availability and rates cannot be guaranteed. The Q Hotel & Spa provides a free shuttle to and from the program. For alternate lodging options, visit the program Web site at www.continuinged.ku.edu/kumc/patient_education/
Registration is complimentary; however, pre-registration is required.
Location & Parking All events will take place at the Embassy Suites on the Plaza, 220 W. 43rd Street, Kansas City, MO 64111. While attending this activity, you can be reached at 1-816-756-1720. Callers should ask for the KU Medical Center Midwest Pulmonary Vascular Conference. Please bring a sweater or jacket, since temperatures can be difficult to control in meeting rooms.
For more information, please visit our Web site at www.ContinuingEd.ku.edu (keyword: Patient Education)
Privacy Policy KU Continuing Education does not share, sell or rent its mailing lists. You have our assurance that any information you provide will be held in confidence by KU Continuing Education. We occasionally use mailing lists that we have leased. If you receive unwanted communication from KUCE, it is because your name appears on a list we have acquired from another source. In this case, please accept our apologies. Program Accessibility
We accommodate persons with disabilities. Please call 785-864-5823 or mark the space on the registration form, and a KU Continuing Education representative will contact you to discuss your needs. To ensure accommodation, please register at least two weeks before the start of the symposium. University of Kansas is committed to providing programs and activities to all persons, regardless of race, religion, color, national origin, ancestry, sex, age, disability and veteran status. In addition, university policies prohibit discrimination on the basis of sexual orientation, marital status and parental status. University of Kansas Medical Center is an AA/EO Title IX institution.
o Special Accommodation If you will need special accommodation, please mark the box above, and a member of the Continuing Education staff will contact you.
Fees Registration is complimentary; however, pre-registration is required. o Patient: $0 o Caregiver: $0
Please Print Title (Mr., Mrs., Ms., Dr.)_____________Full name (First, MI, Last, Suffix)_______________________________________
Address (o Home or o Work)______________________________________________________________________________
City, State, ZIP___________________________________________________________________________
Easy Ways to Register 1. Mail: Complete the registration form and mail to: The University of Kansas, Continuing Education, Registrations, 1515 Saint Andrews Drive, Lawrence, Kansas 66047-1619 Phone: Toll-free 877-404-KUCE (5823) or 785-864-KUCE (5823)
Pulmonary Hypertension Symposium: Patient Education Sponsored by University of Kansas Medical Center, Division of Pulmonary and Critical Care Medicine Washington University, Division of Pulmonary and Critical Care Medicine University of Kansas Medical Center, Department of Continuing Education
MARK YOUR CALENDARS!
Here are some notes/dates worth marking on your calendar. As always, more information will follow as we get closer to the dates.
Support Group Meeting-New Therapies on the Horizon; Updates on Clinical Trials! Saturday September 5, 2009 12-2pm Location information to come soon! Speaker: Dr. Murali Chakinala, Washington University Physicians *Sponsored by Washington University PHA Clinic
Support Group Meeting-3rd Annual PH Symposium Friday October 2, 2009 Located at UMKC this year, joint event with Washington University School of Medicine & University Missouri Kansas City. For more information, visit the website: http://www.continuinged.ku.edu/kumc/patient_education/
"Dinner/Wine-Tasting" Fundraiser Saturday November 7, 2009 5pm-9pm Sunset Lakes Golf Resort Tickets: $25/adult & $7/children Speakers: Carl Hicks, Jr. PHA Chairman of the Board; & Dr. Murali Chakinala, Pulmonology & Critical Care at Washington Unversity School of Medicine. Come for an evening of info, food, & fun!
St. Louis Beacon News Article
Hey Everyone! Check out our local "Stars" as they paint a true and accurate picture of Pulmonary Hypertension. http://www.stlbeacon.org/issues_politics/business/pulmonary_arterial_hypertension
A big "Thanks" for doing a great job at bringing attention to our disease!
PHA Awareness Month Wine-Tasting Fundraiser!
Dinner/Wine-Tasting Fundraiser: Join us Saturday November 7, 2009 at the Sunset Lakes Golf Resort (13366 Watson Rd, St. Louis, MO 63127) to celebrate PHA Awareness Month. Tickets are ON-SALE NOW!!! ($25/adults & $7/children) Join us for a nice evening out to include: dinner, free wine-tasting, silent auction, and much more! Dr. Murali Chakinala, Washington University School of Medicine, Division of Pulmonology & Critical Care Medicine, and Mr. Carl Hicks, Jr., Chairman of the PHA Board, will be our featured speakers. Feel free to contact us for more information and to purchase your tickets today! PHA accepts: cash, check, Visa, Mastercard, Discover, American Express, & Diner's Club. All purchases & donations are tax deductible! Order now, they are going fast!
September '09 Support Group Meeting!
"New Therapies on the Horizon-Updates on Clinical Trials"
By: Dr. Murali Chakinala, Washington University School of Medicine, Pulmonary & Critical Care Medicine.
We welcome you to join us on Saturday September 5, 2009 from 12pm-2pm at the Center for Advanced Medicine Building, Conference Room 1, on the Barnes-Jewish Hospital Campus. Dr. Chakinala will be talking about new medicines and treatments being tested for pulmonary hypertension. This is a great time to see whats coming next and how they are different from todays medicines. Please RSVP by Wednesday August 26, 2009, to Amanda McKee (314) 831-4520, so we know how many to plan for. Everyone is welcome to participate in this informational discussion!
Meeting Location: Center for Advanced Medicine Building (CAM) Conference Room 1 on the 3rd floor. Go thru main doors and take the elevators to the 3rd floor, follow the signs.
Directions: From the East: Take I-64/40 West to Kingshighway Exit and go North. Turn right at Forest Park Parkway and make another right at Euclid. To self park, turn LEFT into the North parking garage at the corner of Euclid Ave. and Parkview Place. Drop-off is also available. From the West & South: Take I-270 North/South to I-44 East to Kingshighway Exit and go North. To self park, turn LEFT into the North parking garage at the corner of Euclid Ave. and Parkview Place. Drop-off is also available. From the North: Take I-170 South to Forest Park Parkway. Turn right at Euclid. To self park, turn LEFT into the North parking garage at the corner of Euclid Ave. and Parkview Place. Drop-off is also available.
*Sponsored by: Washington University PH Clinic
Satellite Symposium on Available Therapies
For PAH Patients and Caregivers Wednesday, September 9, 2009 5:30 PM 7:30 PM Dinner Provided Chase Park Plaza Hotel Empire Room 212 North Kingshighway Boulevard St. Louis, MO 63108 Complimentary Valet Parking Provided Featured Panelists By Satellite Victor F. Tapson, MD Director, Pulmonary Vascular Disease Program Duke University Medical Center Abby Krichman, RRT Manager, Pulmonary Vascular Disease Program Duke University Medical Center Jeannette Morrill, a PAH patient Local Physician in Attendance Murali Chakinala, MD Director, Pulmonary Hypertension Center Washington University School of Medicine Join us for this special satellite presentation and discussion to learn about: Evaluating all your treatment options Actively managing your PAH Space is limited. To register: Contact Jennifer Roe toll free at 866.495.5053 or by e-mail at jennifer@nathansonpartners.com. Registration deadline is Monday, August 31, 2009. Sponsored by: United Therapeutics
The
information provided on the PHA website is provided for general information
only. It is not intended as legal, medical or other professional
advice, and should not be relied upon as a substitute for consultations
with qualified professionals who are familiar with your individual
needs.
