Transitioning From Pediatric to Adult Care

How to Use This Guide

The goal of this guide is to help you and your parents prepare for your transition to an adult healthcare setting and responsibility for your own healthcare. If you make these preparations a few years, rather than a few months, before the time of transition, you won’t be overwhelmed when it’s finally time to move to an adult healthcare setting and manage all aspects of your pulmonary hypertension (PH), whether you are 18, 21, 25 years or older.

This guide offers suggestions as to what responsibilities you should take on for your own healthcare depending on your age. We’ve also provided forms that will help you gather all the information you will need to comfortably discuss your PH care with your healthcare team when you switch to an adult healthcare setting.

Because you may have been diagnosed with PH ten years ago, last year, last week, or anywhere in between, you will need to adapt this guide for your own situation. Talk with your parents and your healthcare team to determine how you might adapt these goals so they are right for you.

Explore the Guide

Teen Girls at CrawPHish FestivalTeens at the CrawPHish Festival (Houston, Tex.)

Why Transition?

Learn what the difference is between pediatric and adult PH care, why some teens transition to adult care and why some don't. Read on

Preparing to Transition

Next Steps for Young Adults

As you transition into your 20s, consider joining Generation Hope to connect with other young adults in their 20s and 30s. Get connected with other young adults living with PH

Newly Diagnosed?

If you were just diagnosed with pulmonary hypertension, there's a lot for you and your family to learn. Explore our Newly Diagnosed section or request a free information packet

 

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.