“I was diagnosed with PH in June 2003 at the age of 27, two weeks after I graduated from college with my master’s degree and two weeks before my wedding. It was an extremely difficult time for our family to say the least.
We began treatment right away with Dr. Murali Chakinala at Barnes Jewish in St. Louis. We worked our way through Tracleer®, sildenafil, Remodulin® (sub-q and central line) and finally Flolan®. Fortunately, I was able to continue working through this time (I am a social worker for the state of Oklahoma).
My health continued to decline and I was listed for transplant in January 2007. I went on Long Term Disability with my job and my husband and I relocated to St. Louis on New Year’s Day 2007. We received our call on February 17, 2007.
My recovery was slow and filled with many bumps in the road, but ultimately was a huge success. I was discharged from the hospital in May 2007 and was able to return home to Oklahoma in June. I have chronic rejection, but my symptoms seem to be stable and my PFT’s are stable as well. I returned to my job in August of 2007 and things have gone very well for us.
My husband and I decided to start a family and we welcomed our son on January 22, 2010. He is the joy that we always hoped for, but never dared expect with my health. My transplant saved my life and gave us the opportunity to have a family. We are so grateful to our family for their support and our extended family at Barnes-Jewish Hospital in St. Louis for the miracle that they gave to us.”