2024 World Pulmonary Hypertension Day

World Pulmonary Hypertension Day is an annual global event to raise awareness of pulmonary hypertension, a severe condition affecting the lungs and heart. PHA Europe spearheads the 2024 World PH Day campaign with the theme “United for,” focused on five pivotal elements of living with PH: early diagnosis, hope, access to care, patient support and the pursuit of a cure.

This global initiative underscores the importance of early diagnosis, nurturing hope, guaranteeing accessible treatment worldwide for people with PH, providing comprehensive care, and striving towards a definitive cure. This united effort signifies a commitment to transform the PH landscape and highlights a collaborative, international effort to address and overcome the challenges of PH.

On May 5, join others around the world to raise awareness of this frequently misdiagnosed disease; advocate for access to PH diagnosis, treatment and care; and celebrate the lives of those living with PH.

Join us on  Facebook,  Instagram, LinkedIn  and X (formerly Twitter) to celebrate World PH Day. Don’t forget to include #WorldPHDay2024 and tag PHA in your posts.

Use the graphics provided below and those in the  World PH Day Toolkit, to change your social media profile images and cover photos.

Social Media Profile Picture

History

World PH Day was first celebrated in 2012 in Madrid, Spain. The global PH awareness day was initiated by the Asociación Nacional de Hipertensión Pulmonar, the Spanish national PH association, and endorsed by 22 patient associations, ten rare and affiliated disease organizations and eight scientific societies. May 5 was chosen as it marked the anniversary of the first pediatric PH death in Spain caused by toxic rapeseed oil. The day was initially celebrated as the World Pulmonary Hypertension Day Scientific Symposium after toxic rapeseed oil caused PH in thousands of people in the early 1980s. Today, PHA Europe spearheads the annual World PH Day campaign, providing online tools for individuals and organizations to raise awareness of PH globally.

Pulmonary Hypertension Affects People of All Ages, Everywhere

Not all pulmonary hypertension is the same. PH is a general term used to describe high blood pressure in the lungs from any cause. There are five different groups of PH based on different causes.

Group 1: Pulmonary Arterial Hypertension

Pulmonary Arterial Hypertension can be idiopathic, heritable, developed in association with congenital heart disease or liver disease, induced by drug or toxins such as certain diet pills or methamphetamines, or related to connective tissue diseases such as lupus or scleroderma. Globally, a leading cause of PAH is schistosomiasis.

An estimated 20 million people, mostly in Africa and Asia, develop a severe form of PH from schistosomiasis, a common parasitic disease in which the parasite’s eggs obstruct the pulmonary arteries. Schistosomiasis-related PH is the most common cause of PH in the developing world.

Citation: Papamatheakis DG, Mocumbi AO, Kim NH, Mandel J. Schistosomiasis-associated pulmonary hypertension. Pulm Circ. 2014;4(4):596–611. doi:10.1086/678507

World PH Day 2024

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Group 1: Pulmonary Arterial Hypertension

Group 2: PH Due to Left Heart Disease

In economically developed countries, PH is most often seen as a common complication of left heart disease, which affects at least 26 million people worldwide. Problems with the left side the of the heart, such as valvular heart disease and systolic or diastolic dysfunction, can lead to a backup of blood returning from the lungs, causing pressures in the lung to rise.

Citation: Savarese G, Lund LH. Global Public Health Burden of Heart Failure. Card Fail Rev. 2017;3(1):7–11. doi:10.15420/cfr.2016:25:2

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Group 3: PH Due to Lung Disease

Chronic high altitude, chronic obstructive pulmonary disease and sleep-disordered breathing (sleep apnea) are some of the underlying causes that lead to scarring in the lungs that can cause PH. More than 140 million people worldwide live 10,000 feet or more above sea level.

Citation: Mirrakhimov AE, Strohl KP. High-altitude Pulmonary Hypertension: an Update on Disease Pathogenesis and Management. Open Cardiovasc Med J. 2016;10:19–27. Published 2016 Feb 8. doi:10.2174/1874192401610010019

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Group 4: PH Due to Blood Clots in the Lungs

A rare and progressive form of PH, chronic thromboembolic pulmonary hypertension is caused by blood clots in the lungs. Up to 5% of individuals who have had a pulmonary embolism develop CTEPH.

Citation: McNeil K, Dunning J. Chronic thromboembolic pulmonary hypertension (CTEPH). Heart. 2007;93(9):1152–1158. doi:10.1136/hrt.2004.053603

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Group 5: PH Due to Blood and Other Disorders

Various disorders can cause PH in which PH is secondary to other diseases, including blood disorders, systemic disorders with lung involvement and metabolic disorders.

Sarcoidosis is an inflammatory disease that affects various organs and can lead to PH when increased pressure in the lungs causes weakening and ultimately failure of the right side of the heart.

Citation: Diaz-Guzman E, Farver C, Parambil J, Culver DA. Pulmonary hypertension caused by sarcoidosis. Clin Chest Med. 2008;29(3):549–x. doi:10.1016/j.ccm.2008.03.010

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