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March 2008: Joanne Sperando-Schmidt Testifies Before Congressional Subcommittee
On March 13, PHA board member Joanne Sperando-Schmidt spoke before the House of Representatives Appropriations Subcommittee on Labor, Health and Human Services, and Education. PHA was one of only 30 organizations selected from approximately 700 applicants to testify before the Subcommittee during its one day of public hearings. Joanne was an outstanding representative of PHA and the PH community. Read her story in her own words
March 2008: Susan Temple and Support Group Educate Congressional Staff Member
Susan Temple, a 435 Campaign member and support group leader, recently held a different kind of support group meeting. She encouraged group members to invite their U.S. representatives and senators to a meeting focused on "Health Legislative Issues." The efforts were successful: Judy Mattox, a district representative from the office of The Honorable Virgil Goode attended the meeting. Read her story in her own words
March 2008: Budget Progress with the Specter-Harkin Amendment
During the same week that Joanne Sperando-Schmidt was preparing her testimony before the appropriations subcommittee, members of the 435 Campaign were also busy. They responded to a budget-related action alert with calls to their senators encouraging them to support an amendment to the FY09 budget resolution offered by Senators Arlen Specter (R-PA) and Tom Harkin (D-IA) to increase funding for the NIH. The amendment called for an additional $2.1 billion (a 10.2% increase) for the NIH in FY09. On March 13, the Senate adopted the Specter-Harkin amendment with a vote of 95-4. While adoption of this amendment doesn't guarantee that the additional money will be provided to NIH, getting it included in the budget resolution is an important first step.
January 2008: UPDATE: It’s Official! November Declared PH Awareness Month in New Jersey
April 2007: With persistence, Patty Farrow has seen her PH advocacy grow from a casual conversation with the mayor of her small town to a pending resolution in the New Jersey legislature.
The resolution calls for every November in New Jersey to be declared Pulmonary Hypertension Awareness Month! Patty has been working with her local elected officials on an ongoing basis over the past year to raise awareness about PH. Read more about her exciting progress and see a copy of the recently proposed state resolution (PDF).
November 2007: Congressional Luncheon a Success!
Eighty-five people representing PH patients, family members, and corporate professionals, as well as their legislative supporters, enjoyed a buffet lunch while listening to a series of powerful speakers, each of whom approach PH from a different perspective. At the close of the luncheon, a number of legislative staff left the room with tears in their eyes. Read story
March 2007: Piedmont Support Group members educate their Senator about PH in person
Cindy Pickles, a member of the 435 Campaign, led a successful meeting with Senator Burr of North Carolina in his home office recently. Cindy contacted Senator Burr’s office and requested a meeting six months ago, so the call inviting her to a meeting the following Monday came as something of a surprise. None-the-less, Cindy jumped at the opportunity to be face to face with her Senator talking about pulmonary hypertension. Read more
2/16/07: 2007 Budget is 2 Victories in 1
February 2007: NHLBI Funds Millions of Dollars for PH Research Through Research Centers (Read more PH Research Act succeses)
 11/15/06: PHA’s President, Rino Aldrighetti, introduces Mrs. Annette Lantos to a standing-room only crowd at PHA’s 3rd Annual Congressional Luncheon. Read more
 8/25/06: Rep. English (PA-3) Speaks to Mercer Area PH Support Group
 3/29/06: PHA Board Chair Jack Stibbs Testifies Before Congress with Daughter, PH Patient Emily
 3/22/06: PH awareness Rockin’ for the Cure Concert a huge success
12/8/05: PH Research Act is heard in House Energy and Commerce Subcommittee on Health
 The PH Community gathers to introduce the PH Research Act! Read about all the great PH Research Act successes.
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