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Help Us Fight this Devastating Disease

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Did you see one of our PHAware public service announcements (PSAs) on TV or radio? You may have heard Lucas, a kid living with pulmonary hypertension, talk about the need for pediatric PH research, or you may have heard his father Steve on our various other PSAs.

Pulmonary hypertension is a rare, incurable lung disease that is high blood pressure in the lungs. It is a chronic and life-changing illness that can lead to heart failure. You can learn more about what it means to live with PH by reading Lucas' story below as well as PHer Jessica and caregiver Nancy. You can help our PHAware campaign to shorten the time to diagnosis so the disease is caught in the early stages by sharing our stories with your friends.

Please help us fight this devastating disease by making a donation to PHA so we can continue to provide education and support to our community and fund research to find a cure. You can also learn more by ordering our Understanding PH brochure or find an event to attend to join us in the fight against PH.

The Faces of Pulmonary Hypertension

Meet Lucas Meet Jessica
Meet Nancy
Meet Joel

For the Media

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Help Get Public Service Announcements on Your Local Stations

The stations already have the PSAs in their Master Control. You just need to ask them to play them. Easy step-by-step directions and call scripts

Watch all our PSAs

PH by the Numbers

  • While there are 12 treatments for pulmonary arterial hypertension (PAH) in adults and 1 for CTEPH (PH from pulmonary emboli), there are 0 for pediatric patients and other types of PH, and there is no cure.
  • PHA has the only pediatric PH research program in the world.
  • 20-30,000 people in the U.S. are receiving PH-specific therapy.
  • Some PH therapies cost upwards of $100,000/year. Many patients need more than one PH therapy.
  • Many patients will see 3 or more different physicians over a 3 year period before they are properly diagnosed with PAH.
  • Women are 4 times more likely than men to be diagnosed with idiopathic PAH (IPAH).
  • PH affects people of all ages, gender and race.

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.