Skip to main content
Home
About PHA
Contact PHA
Shop PHA
Sign In
donate
join
press
events
Search:
Patients
Newly Diagnosed
Request an Envelope of Hope
Envelope of Hope Order Form
FAQs
Plan for Your First PH Appointment
About PH
Symptoms
Risk Factors
Birth Control and Hormonal Therapy
Diagnosis
Acute Vasodilator Testing
Diagnosis Testing Summary
Types of PH
Genetic PAH
Treatment
Conventional Medical Therapies
Ambrisentan (Letairis
®
)
Bosentan (Tracleer
®
)
Sildenafil (Revatio
®
)
Tadalafil (Adcirca
®
)
Iloprost (Ventavis
®
)
Treprostinil (Remodulin
®
/ Tyvaso
®
)
Epoprostenol (Flolan
®
)
Room Temperature Stable Epoprostenol (Veletri
®
)
Stem Cell Therapy & PH Alert
Lung Transplantation
Information for Friends and Family
Before Lung Transplant
After Lung Transplant
Doctors Who Treat PH
Referral to PH Specialist
Find a Doctor
Living with PH
Empowered Patient Online Toolkit
Tab 1: Very Important Documents
Tab 2: Questions and Notes
Tab 3: Medical Records
Tab 4: Travel
Tab 5: Education and Resources
Day-to-Day Living
Health and Medication Management
Emergency Situations
MedicAlert
Coping with PH
Fighting Sadness and Depression
Helping Loved Ones
Helping Your Child Cope
Caregiver Shout-Out!
Working with PH
Diet and Nutrition
Salt and Sodium
Fluids
Supplements
Managing Nausea
Exercise and PH
Traveling with PH
Climate and PH
PH Kids
Meet PH Kids
Cullen
Eric and Isaac
Iain
Isaiah
Jadyn
Katy
Kendra
Ryan
Shannon
Shaye
Tips for Kids
Just for Fun
PH Crossword
PH Picture Challenge
PH Wordfind
Share With PH Kids!
Young Adults with PH
Join Our Email Group
Generation Hope Blog
Young Adult Issues
Dating and Relationships
College and Scholarships
Family Planning
Considering Adoption with PH
The Adoption Process: Some First Steps
Adoption Success Story
Associated Diseases
Watch Class Recordings
Patient Stories
Living With PH Plus... HHT
Living With PH Plus... HIV
HIV
Hereditary Hemorrhagic Telangectasia (HHT)
Liver Disease
Methamphetamine Use
Scleroderma
Sickle Cell Disease
Sleep Apnea
Meet Other Associated Disease Patients
Insurance Resources
Current Issues
Healthcare Reform
Statement of Principles
Coverage Connection
Know Your Rights
Understanding & Choosing Your Insurance
Types of Health Insurance
Medicare
Social Security Disability
Claims, Appeals & Complaints
Prior Authorization & Step Therapy
Obtain Prior Authorization
Filing Claims
How to File a Claim
Checking Your Claim Status
Appeals
Reasons for Claim Denials
Submitting an Appeal
Grievances & Complaints
Department of Insurance
Template Letters
Communicating with Insurance Companies
Financial Assistance
Drug Discount Card
Adcirca
®
Flolan
®
Letairis
®
Remodulin
®
Revatio
®
Tracleer
®
Tyvaso
®
Ventavis
®
Victories
Don Burdolksi
Marge Lanzola
Racheal Locklear
Hada Monahan
Kathy Morton
Jennifer Tahmoush
More Resources
Glossary of Terms
Education Programs
Research & Clinical Trials
How Patients & Families Can Participate
Understanding the Process & Importance of Clinical Research
Resources
Survival Guide
Writing Team
Glossary of PH Terms
Acronym Decoder
General Resources
Related Health Organizations
Pharmaceutical & Specialty Pharmacy Companies
Recursos en Español
News & Information
What's New in PH
Research News
PHA News
Pathlight
Subscribe to Email Lists
RSS News Feeds
Caregivers
Resources for Family and Friends
FAQs for Family and Friends
Caring for Your Loved One
Caring for Yourself
Find Support
Caregiver Shout-Outs
Parents of Children with PH
Find a PH Pediatrician
Coping as a Family
Co-Parenting a Child with PH
You and Your Partner: Caring For Your Relationship
Talking About Your Child’s PH: A Parent’s Story
Find Support
Pediatric FAQs
Planning for School
School Resource Handbook
Individualized Education Plan (IEP) and 504 Plans
Watch Planning for School Webinar
Camps
Resources
Bereavement
News & Information
What's New in PH
Research News
PHA News
Pathlight
Subscribe to Email Lists
RSS News Feeds
Medical Professionals
PHA Medical Membership Networks
PH Clinicians & Researchers
Join/Renew
Update Profile -
current members only
Find a Doctor Directory
PH Professional Network (
formerly PH Resource Network
)
Join/Renew
Invitation from the Chair
Benefits
Committees
Mentor Program
Apply to be a Mentee
Apply to be a Mentor
2011 Symposium
Scientific Leadership Council
Members
Committees and Education programs
Education Committee
Research Committee
Journal Editorial Board
Scientific Sessions Committee
Medically Led Sessions Committee
PHA Online University
Education Programs
Research
PHA's Research Program
PHA/Pfizer Proof of Concept Research Grants
PHA-NHLBI K08/K23 Career Award
How to Apply
PHA-ATS-Pfizer Research Fellowship
PHA-AHA Fellowship Program
Other PH Research Opportunities
PH Clinical Trials
Advances in PH Journal
Treatments
Consensus Statements
Associated Diseases
HIV
Hereditary Hemorrhagic Telangectasia (HHT)
Liver Disease
Methamphetamine Use
Scleroderma
Sickle Cell Disease
For Your Patients
Insurance Resources
Find a Doctor Directory
Medical Education Calendar
News & Information
What's New in PH
Research News
PHA News
Pathlight
Subscribe to Email Lists
RSS News Feeds
Community
Connect Online
Discussion Board
Board
Archives
Email Groups
Online Support Group Chats
Chat Rooms
How to Chat Anytime
Local Support Groups
Find a Group Near You
Stories from Groups
Inspiration from Leaders
Support Group Quilts
Start a Group
Support Group 101 Webinar
Start a Group Form
Telephone Support
Patient Telephone Support Group
Caregivers Telephone Support Group
Parents Telephone Support Group
Patient-to-Patient Support Line
Grupos de Apoyo
Patient and Caregiver Mentors
Ask a Question
Mentor Spotlights
Liz Brigham
Laura O'Donnell
Sean Wyman
Our Journeys
Share Your Story
Download PHA Images
Get Involved
PH Awareness Month
Sponsorships
Advocacy Action Center
Appeals for Action
Contact Your Representative About PH
Contact Your Senators About PH
Demand Health Coverage That Meets Your Needs
Conference 2012 Advocacy Challenge
Contact Info for Elected Officials
Connect Locally with Members of Congress
Support Group Meeting
District Visit
Town Hall Meeting
Proclamations
Join the
435 Campaign
Victories and Successes
1100 Letters Sent to Congress
Visit with Health LA Pays Off
National Call In Day
Rev. White Goes to Washington
Local Legislative Visit Yields Success
Toolbox
Contact Information for your Members of Congress
PH Research and Education Act Resources
Tips for Communicating with Members of Congress
Sample Scripts and Talking Points
Overview of the Legislative Process
Raise Awareness Through the Media
Join the 50 State Media Challenge
Challenge Success Stories
Online Media Guide
Basic Steps
Share Your Story
Letters to the Editor & Op-Eds
Media at PH Events
PSAs
Toolbox
Making Connections
Working with Reporters
Interview Tips
Press Releases
Media Advisories
Sample PSAs
Receive Media Alerts
Community Education
Exhibit
Give a Talk
Get a Proclamation
Steps
Success Stories
Raise Awareness Through the Media
Organize a Special Event
Fundraise
At Special Events
Support an Event
Special Events Calendar
Organize an Event
Why Plan a Special Event?
Types of Events
Event Planning Guidebook
Event Mentors
Event Organizer Resource Center
Stories and Photos
Browse Full Listing
Featured Campaign: Path to a Cure Kilimanjaro Climb
Live from Mount Kilimanjaro
News Coverage
Unity Walks/ Community Events
Featured Campaign: Mississippi River Swim
Pathlight Feature Interview
Media Library
Lil’s Journal
Online
Success Stories
Frequently Asked Questions
Tips
At Work
Donor Story
Workplace Toolkit
At Celebrations
Al’s 80th Birthday
Samantha's Bat Mitzvah
Curtis' Wedding Anniversary
Jen & Tommy's Wedding
Fight for the Cause Online
Raise Awareness with Your Social Networks
Facebook Fundraising
Volunteer
Volunteer Form
Volunteer Profiles
Alan Harder
John Hess
Carol Morrison
Merle Reeseman
Katie Tobias
Conchita Watson
Volunteer Night
Tom Lantos Innovation in Community Service Awards
Program Guidelines
Grant Reporting
2010 Award Winners
Donna Caterini
Elzarie Devenish
Kathy Groebner
2011 Award Winners
ANHP (Spain)
Israel PH Association
Donna Lain
Education Programs
2012 Conference
Patients and Caregivers
PHA Classroom
Live e-Learning Events
Recordings
About PH
Living with PH
Caregivers and Parents
Newly Diagnosed Patients
Associated Diseases
Insurance
Get Involved
PHA Updates and Events
2010 Conference
PH Association Leader Lessons
En Español
News Feed
PHA on the Road: PH Patients and Families Education Forum
Photo Gallery
Medical Professionals
PHA Online University
PH Professional Network Symposium
Handouts
Planning Committee
30-City Program
Registration
Educational Objectives
Planning Committee
Preceptorship Program
Atlanta, GA
Aurora, CO
Chapel Hill, NC
Chicago, IL
Falls Church, VA
New Haven, CT
Pittsburgh, PA (Nov.)
Pittsburgh, PA (Dec.)
Seattle, WA
Registration
Educational Objectives
Planning Committee
PHA on the Road: PH Patients and Families Education Forum
Medical Education On-Demand
Available Formats
Topics
Faculty Speakers
Request a Program
Attend a Program
Planning Committee
Building Medical Education in PH
Building Medical Education in PH Interest Form
Medical Education Fund
Research
PHA's Research Program
PHA-Pfizer Proof of Concept Grant Winners
PHA-NHLBI Award Winners
PHA-ATS-Pfizer Award Winners
PHA-AHA Fellowship Winners
Robyn Barst Pediatric Research Fund
PH Research News
PH International
PH Resources and Associations Worldwide
Africa
Central America
North America
South America
Central Asia
Southeast Asia
South Asia
Australia and Oceania
Europe
Middle East
Medical Resources Worldwide
Resources Available by Language
Recursos en Español
International Faces of PH
Canada, Barry Sullivan
India, Jas Kalra
Mexico, Rocio Penagos Herrera
Pakistan, Shakeela Naz
Venezuela, Migdalia Denis
Global Community Connection
PH Association Leaders' Corner
Email Group
Seed Grant Program
Seed Grant Application Form
Become an MOU-holding PHA Partner
Building an Effective PH Association
Tips and Advice
Stories From Those Who Have Been There
PHA Austria
PHA China
Phe.v. Germany
PH Israel
PHA Japan
PHA Norway
PHA South Africa
PHA (US)
FUNDAVHIP Venezuela
Leader's Toolkit
Leader Lessons
International PH News and Projects
Let Me Breathe
Music Video
Events
Patients
Newly Diagnosed
Request an Envelope of Hope
Envelope of Hope Order Form
FAQs
Plan for Your First PH Appointment
About PH
Symptoms
Risk Factors
Birth Control and Hormonal Therapy
Diagnosis
Acute Vasodilator Testing
Diagnosis Testing Summary
Types of PH
Genetic PAH
Treatment
Conventional Medical Therapies
Ambrisentan (Letairis
®
)
Bosentan (Tracleer
®
)
Sildenafil (Revatio
®
)
Tadalafil (Adcirca
®
)
Iloprost (Ventavis
®
)
Treprostinil (Remodulin
®
/ Tyvaso
®
)
Epoprostenol (Flolan
®
)
Room Temperature Stable Epoprostenol (Veletri
®
)
Stem Cell Therapy & PH Alert
Lung Transplantation
Information for Friends and Family
Before Lung Transplant
After Lung Transplant
Doctors Who Treat PH
Referral to PH Specialist
Find a Doctor
Living with PH
Empowered Patient Online Toolkit
Tab 1: Very Important Documents
Tab 2: Questions and Notes
Tab 3: Medical Records
Tab 4: Travel
Tab 5: Education and Resources
Day-to-Day Living
Health and Medication Management
Emergency Situations
MedicAlert
Coping with PH
Fighting Sadness and Depression
Helping Loved Ones
Helping Your Child Cope
Caregiver Shout-Out!
Working with PH
Diet and Nutrition
Salt and Sodium
Fluids
Supplements
Managing Nausea
Exercise and PH
Traveling with PH
Climate and PH
PH Kids
Meet PH Kids
Cullen
Eric and Isaac
Iain
Isaiah
Jadyn
Katy
Kendra
Ryan
Shannon
Shaye
Tips for Kids
Just for Fun
PH Crossword
PH Picture Challenge
PH Wordfind
Share With PH Kids!
Young Adults with PH
Join Our Email Group
Generation Hope Blog
Young Adult Issues
Dating and Relationships
College and Scholarships
Family Planning
Considering Adoption with PH
The Adoption Process: Some First Steps
Adoption Success Story
Associated Diseases
Watch Class Recordings
Patient Stories
Living With PH Plus... HHT
Living With PH Plus... HIV
HIV
Hereditary Hemorrhagic Telangectasia (HHT)
Liver Disease
Methamphetamine Use
Scleroderma
Sickle Cell Disease
Sleep Apnea
Meet Other Associated Disease Patients
Insurance Resources
Current Issues
Healthcare Reform
Statement of Principles
Coverage Connection
Know Your Rights
Understanding & Choosing Your Insurance
Types of Health Insurance
Medicare
Social Security Disability
Claims, Appeals & Complaints
Prior Authorization & Step Therapy
Obtain Prior Authorization
Filing Claims
How to File a Claim
Checking Your Claim Status
Appeals
Reasons for Claim Denials
Submitting an Appeal
Grievances & Complaints
Department of Insurance
Template Letters
Communicating with Insurance Companies
Financial Assistance
Drug Discount Card
Adcirca
®
Flolan
®
Letairis
®
Remodulin
®
Revatio
®
Tracleer
®
Tyvaso
®
Ventavis
®
Victories
Don Burdolksi
Marge Lanzola
Racheal Locklear
Hada Monahan
Kathy Morton
Jennifer Tahmoush
More Resources
Glossary of Terms
Education Programs
Research & Clinical Trials
How Patients & Families Can Participate
Understanding the Process & Importance of Clinical Research
Resources
Survival Guide
Writing Team
Glossary of PH Terms
Acronym Decoder
General Resources
Related Health Organizations
Pharmaceutical & Specialty Pharmacy Companies
Recursos en Español
News & Information
What's New in PH
Research News
PHA News
Pathlight
Subscribe to Email Lists
RSS News Feeds
Caregivers
Resources for Family and Friends
FAQs for Family and Friends
Caring for Your Loved One
Caring for Yourself
Find Support
Caregiver Shout-Outs
Parents of Children with PH
Find a PH Pediatrician
Coping as a Family
Co-Parenting a Child with PH
You and Your Partner: Caring For Your Relationship
Talking About Your Child’s PH: A Parent’s Story
Find Support
Pediatric FAQs
Planning for School
School Resource Handbook
Individualized Education Plan (IEP) and 504 Plans
Watch Planning for School Webinar
Camps
Resources
Bereavement
News & Information
What's New in PH
Research News
PHA News
Pathlight
Subscribe to Email Lists
RSS News Feeds
Medical Professionals
PHA Medical Membership Networks
PH Clinicians & Researchers
Join/Renew
Update Profile -
current members only
Find a Doctor Directory
PH Professional Network (
formerly PH Resource Network
)
Join/Renew
Invitation from the Chair
Benefits
Committees
Mentor Program
Apply to be a Mentee
Apply to be a Mentor
2011 Symposium
Scientific Leadership Council
Members
Committees and Education programs
Education Committee
Research Committee
Journal Editorial Board
Scientific Sessions Committee
Medically Led Sessions Committee
PHA Online University
Education Programs
Research
PHA's Research Program
PHA/Pfizer Proof of Concept Research Grants
PHA-NHLBI K08/K23 Career Award
How to Apply
PHA-ATS-Pfizer Research Fellowship
PHA-AHA Fellowship Program
Other PH Research Opportunities
PH Clinical Trials
Advances in PH Journal
Treatments
Consensus Statements
Associated Diseases
HIV
Hereditary Hemorrhagic Telangectasia (HHT)
Liver Disease
Methamphetamine Use
Scleroderma
Sickle Cell Disease
For Your Patients
Insurance Resources
Find a Doctor Directory
Medical Education Calendar
News & Information
What's New in PH
Research News
PHA News
Pathlight
Subscribe to Email Lists
RSS News Feeds
Community
Connect Online
Discussion Board
Board
Archives
Email Groups
Online Support Group Chats
Chat Rooms
How to Chat Anytime
Local Support Groups
Find a Group Near You
Stories from Groups
Inspiration from Leaders
Support Group Quilts
Start a Group
Support Group 101 Webinar
Start a Group Form
Telephone Support
Patient Telephone Support Group
Caregivers Telephone Support Group
Parents Telephone Support Group
Patient-to-Patient Support Line
Grupos de Apoyo
Patient and Caregiver Mentors
Ask a Question
Mentor Spotlights
Liz Brigham
Laura O'Donnell
Sean Wyman
Our Journeys
Share Your Story
Download PHA Images
Get Involved
PH Awareness Month
Sponsorships
Advocacy Action Center
Appeals for Action
Contact Your Representative About PH
Contact Your Senators About PH
Demand Health Coverage That Meets Your Needs
Conference 2012 Advocacy Challenge
Contact Info for Elected Officials
Connect Locally with Members of Congress
Support Group Meeting
District Visit
Town Hall Meeting
Proclamations
Join the
435 Campaign
Victories and Successes
1100 Letters Sent to Congress
Visit with Health LA Pays Off
National Call In Day
Rev. White Goes to Washington
Local Legislative Visit Yields Success
Toolbox
Contact Information for your Members of Congress
PH Research and Education Act Resources
Tips for Communicating with Members of Congress
Sample Scripts and Talking Points
Overview of the Legislative Process
Raise Awareness Through the Media
Join the 50 State Media Challenge
Challenge Success Stories
Online Media Guide
Basic Steps
Share Your Story
Letters to the Editor & Op-Eds
Media at PH Events
PSAs
Toolbox
Making Connections
Working with Reporters
Interview Tips
Press Releases
Media Advisories
Sample PSAs
Receive Media Alerts
Community Education
Exhibit
Give a Talk
Get a Proclamation
Steps
Success Stories
Raise Awareness Through the Media
Organize a Special Event
Fundraise
At Special Events
Support an Event
Special Events Calendar
Organize an Event
Why Plan a Special Event?
Types of Events
Event Planning Guidebook
Event Mentors
Event Organizer Resource Center
Stories and Photos
Browse Full Listing
Featured Campaign: Path to a Cure Kilimanjaro Climb
Live from Mount Kilimanjaro
News Coverage
Unity Walks/ Community Events
Featured Campaign: Mississippi River Swim
Pathlight Feature Interview
Media Library
Lil’s Journal
Online
Success Stories
Frequently Asked Questions
Tips
At Work
Donor Story
Workplace Toolkit
At Celebrations
Al’s 80th Birthday
Samantha's Bat Mitzvah
Curtis' Wedding Anniversary
Jen & Tommy's Wedding
Fight for the Cause Online
Raise Awareness with Your Social Networks
Facebook Fundraising
Volunteer
Volunteer Form
Volunteer Profiles
Alan Harder
John Hess
Carol Morrison
Merle Reeseman
Katie Tobias
Conchita Watson
Volunteer Night
Tom Lantos Innovation in Community Service Awards
Program Guidelines
Grant Reporting
2010 Award Winners
Donna Caterini
Elzarie Devenish
Kathy Groebner
2011 Award Winners
ANHP (Spain)
Israel PH Association
Donna Lain
Education Programs
2012 Conference
Patients and Caregivers
PHA Classroom
Live e-Learning Events
Recordings
About PH
Living with PH
Caregivers and Parents
Newly Diagnosed Patients
Associated Diseases
Insurance
Get Involved
PHA Updates and Events
2010 Conference
PH Association Leader Lessons
En Español
News Feed
PHA on the Road: PH Patients and Families Education Forum
Photo Gallery
Medical Professionals
PHA Online University
PH Professional Network Symposium
Handouts
Planning Committee
30-City Program
Registration
Educational Objectives
Planning Committee
Preceptorship Program
Atlanta, GA
Aurora, CO
Chapel Hill, NC
Chicago, IL
Falls Church, VA
New Haven, CT
Pittsburgh, PA (Nov.)
Pittsburgh, PA (Dec.)
Seattle, WA
Registration
Educational Objectives
Planning Committee
PHA on the Road: PH Patients and Families Education Forum
Medical Education On-Demand
Available Formats
Topics
Faculty Speakers
Request a Program
Attend a Program
Planning Committee
Building Medical Education in PH
Building Medical Education in PH Interest Form
Medical Education Fund
Research
PHA's Research Program
PHA-Pfizer Proof of Concept Grant Winners
PHA-NHLBI Award Winners
PHA-ATS-Pfizer Award Winners
PHA-AHA Fellowship Winners
Robyn Barst Pediatric Research Fund
PH Research News
PH International
PH Resources and Associations Worldwide
Africa
Central America
North America
South America
Central Asia
Southeast Asia
South Asia
Australia and Oceania
Europe
Middle East
Medical Resources Worldwide
Resources Available by Language
Recursos en Español
International Faces of PH
Canada, Barry Sullivan
India, Jas Kalra
Mexico, Rocio Penagos Herrera
Pakistan, Shakeela Naz
Venezuela, Migdalia Denis
Global Community Connection
PH Association Leaders' Corner
Email Group
Seed Grant Program
Seed Grant Application Form
Become an MOU-holding PHA Partner
Building an Effective PH Association
Tips and Advice
Stories From Those Who Have Been There
PHA Austria
PHA China
Phe.v. Germany
PH Israel
PHA Japan
PHA Norway
PHA South Africa
PHA (US)
FUNDAVHIP Venezuela
Leader's Toolkit
Leader Lessons
International PH News and Projects
Let Me Breathe
Music Video
Help spread PH awareness and share PH information with your family and PHriends. Use this SHARE tool to share a link to this page with others by posting it on your Facebook wall, Twitter, sending via email, or using one of dozens of other networking services.
To use the SHARE tool, hover your mouse over the SHARE toolbar and click the icon for the service you want to use, then follow the prompts to fill in email addresses and messages.
If you don't see the service you are looking for, click the More icon. You will see a list of dozens of services you can use to share a link to the page.
PHA Events Calendar
List View
Print View
Export as iCalendar
Published Events
Date:
This month
August 2011
September 2011
October 2011
November 2011
December 2011
January 2012
February 2012
March 2012
April 2012
May 2012
June 2012
July 2012
August 2012
February 2012
Show Event Filter
PHA Events Calendar
e-Learning Events
Events Outside the U.S.
PH Education Events
PHA Conferences
Special Events
Sun
Mon
Tue
Wed
Thu
Fri
Sat
29
30
2:00 PM
State of PHA - An Annual Update from PHA President Rino Aldrighetti
31
1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
7:00 PM
British Columbia Pulmonary Hypertension Society - 11th Annual PH Symposium
18
7:00 PM
British Columbia Pulmonary Hypertension Society - 11th Annual PH Symposium
10:00 AM
Havasu City, AZ -- Rare Disease Day
6:00 PM
PA-Strutt Your Stuff Against PH
19
20
21
22
23
24
25
26
27
28
29
1
2
3
Today (Saturday, February 04, 2012)
:
Recurring
:
Specific time zone
:
Longer than a day
Patients
Newly Diagnosed
Request an Envelope of Hope
Envelope of Hope Order Form
FAQs
Plan for Your First PH Appointment
About PH
Symptoms
Risk Factors
Birth Control and Hormonal Therapy
Diagnosis
Acute Vasodilator Testing
Diagnosis Testing Summary
Types of PH
Genetic PAH
Treatment
Conventional Medical Therapies
Ambrisentan (Letairis
®
)
Bosentan (Tracleer
®
)
Sildenafil (Revatio
®
)
Tadalafil (Adcirca
®
)
Iloprost (Ventavis
®
)
Treprostinil (Remodulin
®
/ Tyvaso
®
)
Epoprostenol (Flolan
®
)
Room Temperature Stable Epoprostenol (Veletri
®
)
Stem Cell Therapy & PH Alert
Lung Transplantation
Information for Friends and Family
Before Lung Transplant
After Lung Transplant
Doctors Who Treat PH
Referral to PH Specialist
Find a Doctor
Living with PH
Empowered Patient Online Toolkit
Tab 1: Very Important Documents
Tab 2: Questions and Notes
Tab 3: Medical Records
Tab 4: Travel
Tab 5: Education and Resources
Day-to-Day Living
Health and Medication Management
Emergency Situations
MedicAlert
Coping with PH
Fighting Sadness and Depression
Helping Loved Ones
Helping Your Child Cope
Caregiver Shout-Out!
Working with PH
Diet and Nutrition
Salt and Sodium
Fluids
Supplements
Managing Nausea
Exercise and PH
Traveling with PH
Climate and PH
PH Kids
Meet PH Kids
Cullen
Eric and Isaac
Iain
Isaiah
Jadyn
Katy
Kendra
Ryan
Shannon
Shaye
Tips for Kids
Just for Fun
PH Crossword
PH Picture Challenge
PH Wordfind
Share With PH Kids!
Young Adults with PH
Join Our Email Group
Generation Hope Blog
Young Adult Issues
Dating and Relationships
College and Scholarships
Family Planning
Considering Adoption with PH
The Adoption Process: Some First Steps
Adoption Success Story
Associated Diseases
Watch Class Recordings
Patient Stories
Living With PH Plus... HHT
Living With PH Plus... HIV
HIV
Hereditary Hemorrhagic Telangectasia (HHT)
Liver Disease
Methamphetamine Use
Scleroderma
Sickle Cell Disease
Sleep Apnea
Meet Other Associated Disease Patients
Insurance Resources
Current Issues
Healthcare Reform
Statement of Principles
Coverage Connection
Know Your Rights
Understanding & Choosing Your Insurance
Types of Health Insurance
Medicare
Social Security Disability
Claims, Appeals & Complaints
Prior Authorization & Step Therapy
Obtain Prior Authorization
Filing Claims
How to File a Claim
Checking Your Claim Status
Appeals
Reasons for Claim Denials
Submitting an Appeal
Grievances & Complaints
Department of Insurance
Template Letters
Communicating with Insurance Companies
Financial Assistance
Drug Discount Card
Adcirca
®
Flolan
®
Letairis
®
Remodulin
®
Revatio
®
Tracleer
®
Tyvaso
®
Ventavis
®
Victories
Don Burdolksi
Marge Lanzola
Racheal Locklear
Hada Monahan
Kathy Morton
Jennifer Tahmoush
More Resources
Glossary of Terms
Education Programs
Research & Clinical Trials
How Patients & Families Can Participate
Understanding the Process & Importance of Clinical Research
Resources
Survival Guide
Writing Team
Glossary of PH Terms
Acronym Decoder
General Resources
Related Health Organizations
Pharmaceutical & Specialty Pharmacy Companies
Recursos en Español
News & Information
What's New in PH
Research News
PHA News
Pathlight
Subscribe to Email Lists
RSS News Feeds
Caregivers
Resources for Family and Friends
FAQs for Family and Friends
Caring for Your Loved One
Caring for Yourself
Find Support
Caregiver Shout-Outs
Parents of Children with PH
Find a PH Pediatrician
Coping as a Family
Co-Parenting a Child with PH
You and Your Partner: Caring For Your Relationship
Talking About Your Child’s PH: A Parent’s Story
Find Support
Pediatric FAQs
Planning for School
School Resource Handbook
Individualized Education Plan (IEP) and 504 Plans
Watch Planning for School Webinar
Camps
Resources
Bereavement
News & Information
What's New in PH
Research News
PHA News
Pathlight
Subscribe to Email Lists
RSS News Feeds
Medical Professionals
PHA Medical Membership Networks
PH Clinicians & Researchers
Join/Renew
Update Profile -
current members only
Find a Doctor Directory
PH Professional Network (
formerly PH Resource Network
)
Join/Renew
Invitation from the Chair
Benefits
Committees
Mentor Program
Apply to be a Mentee
Apply to be a Mentor
2011 Symposium
Scientific Leadership Council
Members
Committees and Education programs
Education Committee
Research Committee
Journal Editorial Board
Scientific Sessions Committee
Medically Led Sessions Committee
PHA Online University
Education Programs
Research
PHA's Research Program
PHA/Pfizer Proof of Concept Research Grants
PHA-NHLBI K08/K23 Career Award
How to Apply
PHA-ATS-Pfizer Research Fellowship
PHA-AHA Fellowship Program
Other PH Research Opportunities
PH Clinical Trials
Advances in PH Journal
Treatments
Consensus Statements
Associated Diseases
HIV
Hereditary Hemorrhagic Telangectasia (HHT)
Liver Disease
Methamphetamine Use
Scleroderma
Sickle Cell Disease
For Your Patients
Insurance Resources
Find a Doctor Directory
Medical Education Calendar
News & Information
What's New in PH
Research News
PHA News
Pathlight
Subscribe to Email Lists
RSS News Feeds
Community
Connect Online
Discussion Board
Board
Archives
Email Groups
Online Support Group Chats
Chat Rooms
How to Chat Anytime
Local Support Groups
Find a Group Near You
Stories from Groups
Inspiration from Leaders
Support Group Quilts
Start a Group
Support Group 101 Webinar
Start a Group Form
Telephone Support
Patient Telephone Support Group
Caregivers Telephone Support Group
Parents Telephone Support Group
Patient-to-Patient Support Line
Grupos de Apoyo
Patient and Caregiver Mentors
Ask a Question
Mentor Spotlights
Liz Brigham
Laura O'Donnell
Sean Wyman
Our Journeys
Share Your Story
Download PHA Images
Get Involved
PH Awareness Month
Sponsorships
Advocacy Action Center
Appeals for Action
Contact Your Representative About PH
Contact Your Senators About PH
Demand Health Coverage That Meets Your Needs
Conference 2012 Advocacy Challenge
Contact Info for Elected Officials
Connect Locally with Members of Congress
Support Group Meeting
District Visit
Town Hall Meeting
Proclamations
Join the
435 Campaign
Victories and Successes
1100 Letters Sent to Congress
Visit with Health LA Pays Off
National Call In Day
Rev. White Goes to Washington
Local Legislative Visit Yields Success
Toolbox
Contact Information for your Members of Congress
PH Research and Education Act Resources
Tips for Communicating with Members of Congress
Sample Scripts and Talking Points
Overview of the Legislative Process
Raise Awareness Through the Media
Join the 50 State Media Challenge
Challenge Success Stories
Online Media Guide
Basic Steps
Share Your Story
Letters to the Editor & Op-Eds
Media at PH Events
PSAs
Toolbox
Making Connections
Working with Reporters
Interview Tips
Press Releases
Media Advisories
Sample PSAs
Receive Media Alerts
Community Education
Exhibit
Give a Talk
Get a Proclamation
Steps
Success Stories
Raise Awareness Through the Media
Organize a Special Event
Fundraise
At Special Events
Support an Event
Special Events Calendar
Organize an Event
Why Plan a Special Event?
Types of Events
Event Planning Guidebook
Event Mentors
Event Organizer Resource Center
Stories and Photos
Browse Full Listing
Featured Campaign: Path to a Cure Kilimanjaro Climb
Live from Mount Kilimanjaro
News Coverage
Unity Walks/ Community Events
Featured Campaign: Mississippi River Swim
Pathlight Feature Interview
Media Library
Lil’s Journal
Online
Success Stories
Frequently Asked Questions
Tips
At Work
Donor Story
Workplace Toolkit
At Celebrations
Al’s 80th Birthday
Samantha's Bat Mitzvah
Curtis' Wedding Anniversary
Jen & Tommy's Wedding
Fight for the Cause Online
Raise Awareness with Your Social Networks
Facebook Fundraising
Volunteer
Volunteer Form
Volunteer Profiles
Alan Harder
John Hess
Carol Morrison
Merle Reeseman
Katie Tobias
Conchita Watson
Volunteer Night
Tom Lantos Innovation in Community Service Awards
Program Guidelines
Grant Reporting
2010 Award Winners
Donna Caterini
Elzarie Devenish
Kathy Groebner
2011 Award Winners
ANHP (Spain)
Israel PH Association
Donna Lain
Education Programs
2012 Conference
Patients and Caregivers
PHA Classroom
Live e-Learning Events
Recordings
About PH
Living with PH
Caregivers and Parents
Newly Diagnosed Patients
Associated Diseases
Insurance
Get Involved
PHA Updates and Events
2010 Conference
PH Association Leader Lessons
En Español
News Feed
PHA on the Road: PH Patients and Families Education Forum
Photo Gallery
Medical Professionals
PHA Online University
PH Professional Network Symposium
Handouts
Planning Committee
30-City Program
Registration
Educational Objectives
Planning Committee
Preceptorship Program
Atlanta, GA
Aurora, CO
Chapel Hill, NC
Chicago, IL
Falls Church, VA
New Haven, CT
Pittsburgh, PA (Nov.)
Pittsburgh, PA (Dec.)
Seattle, WA
Registration
Educational Objectives
Planning Committee
PHA on the Road: PH Patients and Families Education Forum
Medical Education On-Demand
Available Formats
Topics
Faculty Speakers
Request a Program
Attend a Program
Planning Committee
Building Medical Education in PH
Building Medical Education in PH Interest Form
Medical Education Fund
Research
PHA's Research Program
PHA-Pfizer Proof of Concept Grant Winners
PHA-NHLBI Award Winners
PHA-ATS-Pfizer Award Winners
PHA-AHA Fellowship Winners
Robyn Barst Pediatric Research Fund
PH Research News
PH International
PH Resources and Associations Worldwide
Africa
Central America
North America
South America
Central Asia
Southeast Asia
South Asia
Australia and Oceania
Europe
Middle East
Medical Resources Worldwide
Resources Available by Language
Recursos en Español
International Faces of PH
Canada, Barry Sullivan
India, Jas Kalra
Mexico, Rocio Penagos Herrera
Pakistan, Shakeela Naz
Venezuela, Migdalia Denis
Global Community Connection
PH Association Leaders' Corner
Email Group
Seed Grant Program
Seed Grant Application Form
Become an MOU-holding PHA Partner
Building an Effective PH Association
Tips and Advice
Stories From Those Who Have Been There
PHA Austria
PHA China
Phe.v. Germany
PH Israel
PHA Japan
PHA Norway
PHA South Africa
PHA (US)
FUNDAVHIP Venezuela
Leader's Toolkit
Leader Lessons
International PH News and Projects
Let Me Breathe
Music Video
MEDICAL PROFESSIONALS
Visit the Medical Education Calendar
Submit an event for the calendar